If we become concerned about you or anyone else while using one of our services, we will act in line with our safeguarding policy and procedures. This may involve sharing this information with relevant authorities to ensure we comply with our policies and legal obligations.
Find out how to let us know if you're concerned about another member's safety.
Find out how to let us know if you're concerned about another member's safety.
Just found out I have Fibromyalgia
carty
Community member Posts: 1 Listener
Hello I have just found out I have fibromyalgia after been in pain for two years not sure what to do or what is going to happen felling scared
Comments
-
Sorry to hear that. I have 2 friends with it. Both quite ill and debilitated. I hope you find a support group. Have you looked on line ?
-
Hi @carry welcome to the community! Feeling scared and not knowing what to do or where to turn when newly diagnosed is completely normal. It is overwhelming when coming to terms with what is happening. Have you checked out FMA UK at all? They offer lots of support and advice. If theres anything else that I can help you with then please let me know
Disability Gamechanger - 2019 -
Dear @carty
In my experience there are 2 camps for fibromyalgia.
One which believes it is a neurological condition and that it's just a question of learning how to live with it eg pacing yourself, pain management eg mindfulness or medication [which may or may not help]. The other is that it is caused by past trauma being played out in the body and therefore there is more hope of recovery in this group, here specialist therapy such as somatic therapy or EMDR can help.
Either way it's important not to be defined by a label. How it affects you and how you deal with it will be a very personal thing and I hope you can find a positive approach to this rather than feel that you will necessarily end up being very ill/debilitated [as some are but I do wonder what they've been told eg if you are told you won't get better or that you'll get worse you tend to live up to that expectation...].
Hopefully you have a supportive GP and maybe they can refer you for some counselling to help you deal with this transition.
Best wishes.
Emma
Emma West
www.emmawestcounselling.co.uk
Brightness
Categories
- All Categories
- 13.3K Start here and say hello!
- 7K Coffee lounge
- 101 Games lounge
- 482 Cost of living
- 4.6K Disability rights and campaigning
- 1.9K Research and opportunities
- 230 Community updates
- 9.6K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 806 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 666 Dating, sex, and relationships
- 374 Exercise and accessible facilities
- 845 Transport and travel
- 32K Talk about money
- 4.6K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17.1K PIP, DLA, and AA
- 5K Universal Credit (UC)
- 6.4K Talk about your impairment
- 1.8K Cerebral palsy
- 886 Chronic pain and pain management
- 183 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.3K Mental health and wellbeing
- 328 Sensory impairments
- 832 Rare, invisible, and undiagnosed conditions
Complete our feedback form and tell us how we can make the community better.