The Green Paper Discussion (the document link is here too!)

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Comments

  • BlindBat
    BlindBat Community Member Posts: 22 Contributor

    I see what you mean but in reality it will be means tested at the point the time limitation expires and you move to UC… which is means tested.

    Someone like myself will stop getting the new style ESA support group payment that is currently joint means tested or time limited. Because in the new scheme it will be both and I’ll lose it after the time limitation expires. Aaargh

  • nursiecat35
    nursiecat35 Community Member Posts: 1 Listener

    My daughter currently receives LCWRA and PIP. She is 19, I read that LCWRA is not available to Young people under 22. Does this mean she will lose the benefit?

  • luvpink
    luvpink Community Member Posts: 4,677 Championing
  • secretsquirrel1
    secretsquirrel1 Community Member Posts: 2,048 Championing

    I’ve had ME over 30 years but not diagnosed until about 15 years ago . Was in so much pain I was also diagnosed with fibromyalgia. Only treatment was GET( now thought dangerous). Activity management and CBT. Nothing worked so so muscle relaxers and painkillers plus tablets for IBS caused by fibromyalgia. Get full points but never a long award even though there’s no cure . In fact over exertion is dangerous for ME. I’d like to know how they allocate the 10 year light touch awards cos I can’t get better . And I now have two ther conditions since my last assessment.

  • Middleton
    Middleton Community Member Posts: 268 Empowering
    edited March 2025

    Brilliant work!

    Just quick question..,If the previous award capabilities were an accumulative lots of 2's… does this mean that when reassessed they only refer to your previous application or is it seen as a new fresh review per se?

    Basically what im trying to say it, as time has proceeded; and i can only talk in regards to my illness; but the nature of my condition is ever-increasing in my disability to do things. Aka- far harder if at all, to washing own hair etc..

    As time has passed, i haven't always kept notes of these ever-changing issues.

    In my original first review i explained that many aspects of my original claim (2019) had remained the same; many aspects had progressed, as they will by the time the next review takes place…I hope this makes sense!

  • Zipz
    Zipz Community Member Posts: 4,345 Championing

    What @YogiBear ? Clobbered or confused? There is something about new claimants only in that section.

  • YogiBear
    YogiBear Community Member Posts: 410 Pioneering

    I'm going to be affected as well. I'm also under 'severe conditions criteria' and was given a long award. This proposed changes change everything.

  • Zipz
    Zipz Community Member Posts: 4,345 Championing
  • egister
    egister Posts: 1,102 Pioneering

    I completely agree. If I didn't work, but lived for my own pleasure, even on benefits, I wouldn't be disabled. "Everything is fine, work, it won't get worse, we are successfully treating you," the doctors told me.

    Ha. haha…

  • Middleton
    Middleton Community Member Posts: 268 Empowering

    Do you attend any of the London Hospitals for Fibro & ME? i only ask as theyre 2 of the conditions i have along with my other co-morbids; so i attend St Thomas' Hospital

  • bench
    bench Community Member Posts: 147 Empowering

    I am in the same boat , can you let me know if anyone can answer this ?

  • BlindBat
    BlindBat Community Member Posts: 22 Contributor

    yep exactly.. that’s what I think too. If you have savings then you will lose NS ESA after that one year thing. Which isn’t currently the case so that’s a big change and loss for me.

  • tomwalker
    tomwalker Community Member Posts: 58 Contributor

    Error so they'll get rid of LCWRA which for my fully disabled wife worth 400 a month but up UK by 50 quid a month by 2029????!

  • Durus
    Durus Community Member Posts: 29 Contributor

    Same for me, I have savings from when I worked so I will have to move over UC eventually now by the looks of it.

    I dont have a ton of savings so i'd still get some money from UC, but probably less than what I currently get from CB ESA.

  • kelley1234
    kelley1234 Community Member Posts: 48 Empowering

    Hi I've checked my award and have scored 4 points on a couple of the descriptors im due to be reassess 2027 will they leave us alone or re assess us too ?

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