Girls with CP & their periods

Embay

Hello all,

My daughter hasn't actually started her periods yet but I feel like it will happen soon. She's 9 and about 2/3 years back she had two lumps come up under her nipples and had started to grow pubic hair, obviously I was concerned so we went to the GP who passed us on to the paediatrician who sent us for a blood test, which came back to say that she wasn't in the precocious period stage, but since then she has grown more hair and some under her armpits, starting to get body odour and more shape around her breast area.

I'm finding it difficult to find help/research on children with cerebral palsy and periods, let alone trying to find all that and add to that equation a child who had continence needs as well.

Has any parents gone through this and could help a stressed mumma out

Hope you are all keeping well and safe

Richard_Scope

Hi @Embay
Here is some information that might be helpful.

Here are some useful videos from the BBC for PHSE and disability

https://www.bbc.co.uk/bitesize/topics/zr9dxnb/resources/1 

There are fair few clips to watch.

I have also found a free PDF version of the book, 'What's Happening to Ellie?'

https://unquotebooks.com/download/whats-happening-to-ellie/

For the incontinence issues 

https://www.bbuk.org.uk/children-young-people/ they really know their stuff and there is a helpline.

Apologies for all of the links but they are a good starting point and I'm sure some parents will be along to share their experiences.

[Deleted User]

Hi @Embay

I hope your well,  

I would advise for you to speak to your daughters school they may know of some external agencies that can support.  

I would also look at your councils local offer, just type into google '(your council) local offer', this will allow you to see what support is on offer around your local area. You may find some local parent groups with parents that have been through similar, that could support and offer advice.