The Green Paper Discussion (the document link is here too!)

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Comments

  • Jenwren
    Jenwren Online Community Member Posts: 80 Empowering

    It can (and depending on the person) often genuinely feel like a threat, but there is also the logic of protection for you, and the other person over what was actually said, if there is an accusation of inappropriate language or behaviour. I think people are hardwired to behave better on camera. it's never nice or easy to be told you're being recorderd but it'll be very different to see how assessors react. Also I'm a big believer in as much as possible getting everything written down and emailed as an extra layer of proof.

    With telling them in advance I think it's just to cover yourself (and them) - legally I'm not sure where the law is on recording people without their consent. I think the real legal problems start if you record them and they don't know, giving their consent may be another issue, but it's something I will try to check out what the law says.

  • worried33
    worried33 Online Community Member Posts: 846 Championing
    edited March 20

    In the Green paper they state that when they remove the WCA system, LCWRA will be replaced by a health top up. There will be two ways to get this health top up.

    Either

    If you have LCWRA prior to April 2026. and then you have another WCA after April 2026, and that keeps you in the LCWRA category, or if you have PIP daily living. They are reactivating WCA's but not for everyone at once, they are going to prioritise specific claimants. This is in the Green paper.

    Logic dictates they will want as little people as possible with the health top up, so I think people who currently get PIP daily living, especially with a 4 point descriptor might be lower priority to have a WCA. This is my assumption, the actual priorities stated have little details other than prognosis length and reason for the most recent WCA.

  • worried247
    worried247 Online Community Member Posts: 2 Listener

    Thank you. No just a desktop and I dont really have anyone that could help (and im pretty uncomfortable with pictures). I'm guessing at worst. I'd have to go to the jobcentre to prove it's me?

  • worried33
    worried33 Online Community Member Posts: 846 Championing
    edited March 20

    There already is a severe category the Tories made, but is very little information on it, other than it is very few people. There was some information on this group in another community, but sadly the information got lost as that community got shut down. It might be a different group not necessarily this group, the green paper doesnt really give any details on it.

  • worried33
    worried33 Online Community Member Posts: 846 Championing
    edited March 20

    I have seen multiple interviews now from mainstream media trying to put pressure on ministers, but they dodging the questions with the usual tripe.

    Also it seems there is a planned date, I guess I missed it when reading the Green paper, but several credible media outlets have said November 2026 the 4 point rule will come in, so not far away, only a year and a half.

    It seems so many people dont understand the descriptor points system and is a huge amount of confusion.

  • ElizaRose
    ElizaRose Online Community Member Posts: 577 Empowering

    LouCie61, I had my UC review a couple of months ago. I do not have a smart phone and am no good at tech. My reviewer said if you can get into the job centre or even get someone else to go into the job centre on your behalf you can take all your evidence to them. In the end, my son took photos of everything and uploaded them for me. I would never have been able to do it myself and found that part a lot more stressful than the actual review.

  • secretsquirrel1
    secretsquirrel1 Online Community Member Posts: 605 Trailblazing

    this is standard practice for them imo . My first pip after being on DLA. Zero points , I got some from MR which apparently isn’t easy but they saw how much evidence I submitted. It went to 2nd tier taking two years . But it’s in my notes I will fight them ( not sure if it makes a difference though) . Did you fill forms yourself ? If you did you also need advice with the form. Also need help and supporting evidence for MR . Record assessment and tell them . In my experience these things first time is a real fight with many ppl regardless of condition. A lot of it is luck of who you get assessment day as bad as that is. But don’t give up that’s what they want .

  • sparrow77
    sparrow77 Online Community Member Posts: 48 Empowering

    Never thought of taking a photo of my MRI that way I didnm request it but they come out with some waffle as to why I couldn't have it.

    This site has alot of info and other fellow Chiarians

    https://forum.chiarisupport.org/

    I was told mine was mild but none of my symptoms are mild so I'm not having that ! Prob is alot of neuros don't know much about it themselves .which is why I'm now speaking with kings . Hopefully you'll get somewhere with st Thomas's. Write down every little symptom that you have you'll be surprised how many issues a chiari can cause . My local hospital sent me away at first stating it was a migraine ! I couldn't even move I was in a horrific mess so I went there daily till they done MRIs . Iv had 2 now of my brain and had a recent one of spine . I wish you all the luck in the world and hope you get somewhere . I did try to drop you a message but couldn't but feel free to message me if needed .

  • sparrow77
    sparrow77 Online Community Member Posts: 48 Empowering

    And strangely I have app with kings this coming Monday also 😂

  • Middleton
    Middleton Online Community Member Posts: 237 Empowering

    I did that on my laptop when they came to my home😁

  • Middleton
    Middleton Online Community Member Posts: 237 Empowering

    Oops! i pressed the record button

  • MB8
    MB8 Online Community Member Posts: 37 Connected
  • worried33
    worried33 Online Community Member Posts: 846 Championing
  • secretsquirrel1
    secretsquirrel1 Online Community Member Posts: 605 Trailblazing

    yes she is bringing in mandatory recording of assessments. The cynic in me says this is legal protection for them not us . She knows full well they avoid giving anything over 4 points hence a new law stating we need 4 points . This means probably half of claimants that currently claim will have to go to tribunal. If it’s anything like when DLA moved to pip they will need to hire new buildings and train new staff including Drs and judges. This will offset their £5b . IMO of course

  • Middleton
    Middleton Online Community Member Posts: 237 Empowering

    I dont mind sharing 👍 I know we're not medically trained but doesnt that look sunken!

  • LouCie61
    LouCie61 Online Community Member Posts: 62 Empowering

    Yes, they are saying November 2026. I haven't had a clear enough focus over the past couple of days to thoroughly read the Green Paper and respond on the consultation. I'll be doing that over the weekend.

    I will also be affected by the 4 point rule. I have points over five descriptors but only 2s and 3s.

    Let's continue to be strong and see what happens. I know it's difficult x

  • Catherine21
    Catherine21 Posts: 4,588 Championing

    Yes I know that wondering when they change criteria

  • Middleton
    Middleton Online Community Member Posts: 237 Empowering

    Is it the assessor or the final decision maker that gives the points on a PIP assessment

This discussion has been closed.