The Green Paper Discussion (the document link is here too!)
Comments
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Never thought of taking a photo of my MRI that way I didnm request it but they come out with some waffle as to why I couldn't have it.
This site has alot of info and other fellow Chiarians
I was told mine was mild but none of my symptoms are mild so I'm not having that ! Prob is alot of neuros don't know much about it themselves .which is why I'm now speaking with kings . Hopefully you'll get somewhere with st Thomas's. Write down every little symptom that you have you'll be surprised how many issues a chiari can cause . My local hospital sent me away at first stating it was a migraine ! I couldn't even move I was in a horrific mess so I went there daily till they done MRIs . Iv had 2 now of my brain and had a recent one of spine . I wish you all the luck in the world and hope you get somewhere . I did try to drop you a message but couldn't but feel free to message me if needed .
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And strangely I have app with kings this coming Monday also 😂
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I did that on my laptop when they came to my home😁
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Oops! i pressed the record button
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Very wise . There are also pen recorders.
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What is IMO ?
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In my opinion.
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yes she is bringing in mandatory recording of assessments. The cynic in me says this is legal protection for them not us . She knows full well they avoid giving anything over 4 points hence a new law stating we need 4 points . This means probably half of claimants that currently claim will have to go to tribunal. If it’s anything like when DLA moved to pip they will need to hire new buildings and train new staff including Drs and judges. This will offset their £5b . IMO of course
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I dont mind sharing 👍 I know we're not medically trained but doesnt that look sunken!
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Yes, they are saying November 2026. I haven't had a clear enough focus over the past couple of days to thoroughly read the Green Paper and respond on the consultation. I'll be doing that over the weekend.
I will also be affected by the 4 point rule. I have points over five descriptors but only 2s and 3s.Let's continue to be strong and see what happens. I know it's difficult x
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Yes I know that wondering when they change criteria
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WhaWhat's IMO
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Is it the assessor or the final decision maker that gives the points on a PIP assessment
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No way it can be stopped I just don't want want to do this anymore
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IIt will fly by how you feeling
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Could you pls explain
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My MP response to attending scope meeting
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We all have every right to be extremely cynical about this. If this was about help or even a good-faith albeit foolish attempt to get people back into work they'd bring in a raft of measures to support people, support employers, include practical measure and bring in rights and legislation to give more proection to sick and disabled but they're not. One thing I would say it don't forget recording is a two way process and and protect you too even though it's not the intension.
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Yours is very similar to mine although I didn't get a pic but I will next time I see them face to face my appt Monday is on phone for some reason . Maybe they will try telling me it's just mild again.
Have they stated if it descends on yours and by how many mm ? My first MRI literally just said "early stage chiari type " second MRI said a whole lot more ,said it was 4mm ,and I had brain sag (matches the rest of the body currently 😂)
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mine isn’t up till next year so due the dreaded form any time . I can’t remember which comment I replied to but most likely regarding someone having problems applying . Not sure how it will go next assessment for me as it’s close to the date of the new rules
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