Scope’s Online Community
Discussion List
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Back in the day
This topic is for us to share pictures and talk about what we feel nostalgic about. ☺️ Who remembers Mr Freeze ice pops from the 80's and 90's? I think the small ones were 5p and the big ones were 10p, I think I liked the cola flavoured ones the best. I also used to have a yellow Mr Freeze ruler that I'd take with me to…
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🐶 Pets Corner 🐱
The online community team have decided we need more pictures of pets around here. They always make everyone smile so why not share them 😊 I'll start with my 2 very season-appropriate black cats, Princess Carolyn and Duchess Fuzzyface! And no, I can't tell them apart 😄 We can't wait to see your pet pictures!
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Exciting Event Coming Soon! In-Person and Online
Watch this space…..
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Hi, I'm new! Anyone formed any friendships here?
Curious what the scope community is like and if people have formed friendships here :) I struggle with isolation as a disabled person. Very curious
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Endless trying to find medication that helps
It's a lose lose. Don't try any feel ill and try a new medicine possibly feel worse. Feeling awful and I'm running out of options in this drug group. When you're already chronically ill, switching to a totally different type of medication is nerve wracking. Can my body handle it?
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Desensitisation therapy AKA Exposure therapy
@Rachel_Scope and I were talking about using desensitisation therapy AKA exposure therapy to address problems that we have with anxiety. Here's a thread for that, which of course anyone can join. This therapy can be used to gradually expose us to feelings and thoughts and even physical symptoms, with the goal of decreasing…
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Are we receiving the correct entitlement
Hi Just asking someone to check to make sure we are recieving the correct benefits we are entitled to. Me and my partner who live together as a mixed age couple both with registered disabilities were forced over to claim Universal Credit because working tax credit or the DWP stopped out WTC entitlement at the time . We…
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Cluster headaches and Migraine
Hi, I have just recently started to get Cluster headaches, I get migraines from weather conditions, thunder and lightning! I can't get much information from my GP about Clusters other than to apply a cold compress when they happen or frozen packet of peas! (which I do) he prescribed Sumatriptan which is a tablet that works…
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Anime, animation, cartoons - are you a fan?
I was inspired to make this post after talking to @GemZee about our shared love of anime. I love a good cartoon or adult animated series and I especially love stopmotion like Wallace and Gromit and Coraline. Are you a fan of animations or do you think they should only be for children? If you are a fan, please share…
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Warm Drinks - do you ever deviate from tea and coffee?
I recently learned that a friend of mine walks around with Oxo cubes in his pocket. If he's out and about, instead of having a cup of tea he likes to crumble the cube into hot water and drink it. He calls it Beefy Tea. 😂 My mind was a little bit blown by this fact. I know Bovril exists, but I didn't think many people were…
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Isolation and keeping up friendships
Does anyone feel like physical illness and disability makes socialising harder? I never had much luck anyways finding or keeping friends anyways because I felt alienated for having a different culture. However being undiagnosed with chronic illness for so long I was so confused why I could only put energy into school,…
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Feeling disrespected and depression triggered
I thought I'd do something fun for myself for bday with friends. They made me feel terrible and made me realise I need better people around me. Easier said than done with physical disability and chronic illness. Guess it's "friends" 🥲 it's always about them even on bday .. Doesn't help I already feel like my people already…
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Feeling like people won't make time for me
With physical disability it hits even harder because it basically filtered out who would actually listen to my needs when it got harder to meet in real life. I get depressed near my bday or special occasions because it reminds me people wouldn't make time for me. Tried to make it special for myself this year. Welp my…
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Have You Been Fined For School Absences While Waiting For Support?
I saw this BBC News article and wanted to share it here… Fines for school absences are a major issue for lots of parents with disabled children so it’s encouraging to see celebrities using their platform to campaign for disabled children and their families. Anna Maxwell Martin joined parent campaigners at 10 Downing Street…
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Halloween Video
Hello, so this ought to be different. We have a projector and we are thinking about projecting something on the blinds to be seen outside. For this reason nothing to detailed, no audio ( but we might use a blue tooth speaker ) so it might work. Black and white is good, colour if fine, live action maybe, cartoon would work…
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Greetings from Devon
Hi, My names Ryan. Looking forward to speaking to actual other humans again. I'm stuck in a particularly cruel mixture of situations here and on my own. I need a hug. Thats not happening so a chat will have to do... 😎
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Beat the members
We used to have a game by @66Mustang called Beat the admins, where members would try and count as high as possible together before an admin notices and interrupts the game. I thought it might be fun to try the reverse, so between those of us with "_Scope" in our names, we're going to try and count to 50 before a member…
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Do people talking on their phones bother you?
I found all the replies to the 'are we getting worse at talking to eachother' discussion really interesting and someone brought up people using mobiles while you're talking to them (I think @Rachel_Scope, but sorry if I'm mis-remembering!). One of my pet peeves is someone scrolling their phone when we're having a…
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What’s the last thing you bought?
The last thing I bought was a new pair of trainers. I decided that I need to treat my feet better and stop buying cheap trainers and go for some with support and memory foam insoles. They've been great so far! What have you bought?
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Antiperfection Art Club - Free online session 🖌️
Do you want to paint but feel like you're not very good? Does it feel too hard to achieve? Well, the Antiperfection Art Club may be for you! Cat Regi is a disabled artist who works with Scope. She has ADHD and a tremor and she wants to help everyone get into painting. She believes that there is no 'bad' art and that…
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ADHD Music / Playlist Advice
Hi! I have had a very recent diagnosis of ADHD, but I also have Autism and have had it since I was around 7 years old, so for the last 20 years or so! I’ve always been a creative person who likes to draw and listen to music. However, I am finding some music on Spotify difficult, as they have lyrics and I end up disliking…
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Fighting the DWP Matrix: A Free Chronicle
Hi everyone. I wanted to share something born out of pure frustration with the UK welfare system. Most of us here know exactly what it feels like to face robotic scripts, lost paperwork and endless walls of bureaucracy when we are at our lowest.I started a blog, but let me be absolutely clear. This is not another dry,…
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Limited Capability for Work Assessment Appointment Question
I have a Limited Capability for Work and Work-Related Assessment appointment in the next two weeks or so. I have a very recent diagnosis of ADHD, which I have logged on my UC Journal, but I am aware that this is a new condition and probably won't be considered at my assessment appointment. I wondered whether the assessment…
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Hoarding?!
Anyone in a similar situation? I've been through quite a of trauma (won't bore you with details) and I'm literally buried in 'stuff'. I'm guessing it's a small pleasure (when I buy stuff) and now I could literally be on the TV as a hoarder. It started small & it's not all rubbish but jeez, now it's beyond the pail. I'm…
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PIP Assessment in Audit with Maximus - how long did you wait
I had my PIP assessment for a new claim a month ago with Maximus. It was over the phone and they recorded it. At the end of my assessment the assessor spoke to me and said I could receive a call for more info and not to worry if I did. They repeated this 3 times so I had a feeling my case may go to audit due to them saying…
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Long time now see
Hi everyone hope your all ok. Some might remember me. I am Chris 51 from Blackpool. I live alone . Anyone want to chat please do.
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Pension Credit
Hi all, I have LPA for my elderly mother. We have just sold her property, and she has temporarily moved in with me until I can find and BUY her own bungalow, max 6 months. She receives State Pension and Pension Credit; will she now lose the Pension Credit? Is this based on my income? As I have no income - I am a full-time…
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Looking for wheelchair users to help test RollSense
Hi everyone, We’re building RollSense, a mobile app designed to help wheelchair users understand how sidewalks and outdoor routes actually feel to travel on — not just whether they are technically marked as wheelchair accessible. The idea is simple: Your phone is securely mounted or fixed in a stable position on your…
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Have you turned the heating on?
Last night we were very close to putting the heating on but I refused to give in and just piled on more blankets 😆 Are you stubborn like me, or have you decided that being comfortable is more important?
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CEA Card - free cinema tickets for a guest of a disabled person
Did you know about the CEA card? It is a national card scheme developed for UK cinemas by the UK Cinema Association. The Card enables a disabled cinema guest to receive a complimentary ticket for someone to go with them when they visit a participating cinema. A complimentary ticket is provided on the assumption that the…
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Upcoming Events
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Northern Hybrid Cerebral Palsy Meetup
A meetup for adults with cerebral palsy who live in Northern England. Hybrid meetup for adults with cerebral palsy in Leeds. Join in person or online. Teams joining link sent after booking. This is a relaxed, friendly meetup for adults with cerebral palsy living in or around Leeds. This is a collaborative event with…