Scope’s Online Community
Discussion List
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Stuck and no help forthcoming.
My sisters child turns 16 in July, my sister had a tribunal three months ago on her behalf and was awarded her dla until March which falls short of her 16th birthday,thus sending the system into meltdown as It wont recognise the short fall ,as tribunal usually awards to the birthday month. This has gone on since the start…
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Making a Will
Hi, Sorry if this isn’t in the correct section. I/we are looking to make a will, and looking for a bit of advice on how to make one and the cost. I am guessing it will be a simple Will, we want everything to go to the living partner, then onto to out 3 children. We are Mortgage free and have saving in different bank…
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Desperate help needed for 8 year old
I need desperate help for my grandson. He has been diagnosed with autism (high complex needs) and is currently waiting for a diagnosis of ADHD. He was non verbal but although he can't hold a conversation, he can tell you what he wants and needs. On one hand he is the most loving and caring boy but he has a violent side,…
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Problem with Notifications.
When I logged in this morning I had 14 notifications none of them was an answer to a post I had made. Is there a problem with notifications?
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More Can Kicking By The UK Government?
https://www.theguardian.com/environment/2026/oct/21/jackdaw-gasfield-climate-campaigners-condemn-decision-north-sea-mining
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'Thanks to Universal Credit, I can’t live with my girlfriend without losing financial independence'
In an article in the Metro Shona, a Scope storyteller, explains how Universal Credit rules mean she can't move in with her partner without losing her income and financial independence. Do you think it's fair that a partner's income and savings are taken into account if two people live together? Do you think disabled people…
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Food waste
Has anyone else found that food isn't lasting as long? I feel horrible about it but more and more I'm having to throw out food because it'll be off so quickly. I used to get fruit and veg and it'd last the week in the fridge (assuming I stored it well), now I'm lucky if I get home and it's not rotten en route! I can't find…
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Argh I’ve been meaning to
My bedside drawer is completely chockablock. It’s got so full I can’t close it and I have to do that thing where I reach inside to fiddle about with the mess to open it. Sometimes I even get my hand stuck in it!! I’ve been saying I’ll sort it for months now but it’s actually worse now than when I first noticed it. What…
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Are You A Dog Person Or A Cat Person?🐶😺
It should come to no surprise that I am a dog person😄 I am obsessed with my dog😂 I wonder if we have more cat people or dog people on the community..
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Hi, my name is TheFibroMum
I have started a Facebook social media page on living with fibromyalgia and being a mother ♥️ I have hypermobility spectrum disorder as well. I use a power chair. We are hoping to adopt a second child after having our birth son. I want to show people you can be disabled, have a dynamic disability and still parent with…
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Hi, my name is Gary73!
Hi I filled 8n my second but of my form on the 28th of April I'm asking how much longer now
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Hey
Hello everyone, its nice to meet you. I dont really know what to say. I'm nearly 9 months out from my Acute Compartment Syndrome injury. Im on my own and I have no people in my life that were present before this. I dont know who I am, I dont know what, I am. I also have myofacial pain syndrome in my back. None of this was…
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What's your earliest memory?
I'm always a bit wobbly on my early memories as I never know whether I'm remembering something real or recalling a photo! But I very vividly remember the moments just after accidentally hurting my hands aged about 3. I can still vividly recall being helped by my mum and what my little hands looked like out in front of me.…
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Hello from new member
🍋🍋🟩🗡️⚽️🌷🌷🌷👸🏽🦋⚖️ Pronoun TOY 🧸
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CoppaFeel! Launches New Accessible Guide to Chest Checking
CoppaFeel! is a youth focused breast cancer awareness charity with a mission to get every young person checking their chest monthly. They believe that everyone should have access to information that helps them get to know their body. To help address a gap for people who may find checking difficult due to a disability or…
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when I will be the appointee?
This discussion was created from comments split from: Removing an appointee.
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Wife causing grief over fibre upgrade
My wife is causing me extreme grief over our necessary full fibre upgrade. She has a fire phobia and doesn't like things left plugged in overnight - even the Sky box ! We need a full fibre upgrade which includes 3 separate "boxes" needing 24/7 power - which she doesn't accept are necessary ! She tells me that if I go ahead…
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Removing an appointee
This is a query on behalf of a friend who doesn't use the internet. His son is his appointee and he now feels able to handle his affairs on his own would removing his son as an appointee affect his claim ? (in terms of how much help is needed etc) or would it not ? My advice is you can always remove him and ask for help if…
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what I think about having CP
My mind works but my body is ****
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Early for appointment
I had a neurology appointment this morning at 9.40, checked my letter before I left to ensure I had the time right and arrived at the hospital at 9.15 as traffic was excellent. Try signing in on the machine and it wouldn't work so figured it's because I'm so early... Went to the main reception desk who told me they…
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post-polio syndrome
Hi, my name is Cranky_1959 and I'm new to this site. I had polio in 1960 when I was 6 months old. It would be really nice to chat to people who have post-polio syndrome and who like me suffer with chronic pain and how they cope with the pain.
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Hi all
Hi all! I’m terrible at introductions but I’ll give it a go. I’m Gem and I’m in my 40s. I have Cerebral Palsy but have been suffering with a new condition for the past 2 years and have possibly been misdiagnosed until recently. It has affected my life a lot (my life has pretty much been on hold) so I thought chatting to…
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Universal Review - can they take it away due to gambling addiction?
can universal stop my payments or reduce them by gambling addiction? I haven’t even got more then 6k in any account
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Worried about Universal Credit review after gambling, half hour phone call?
Hi Universal credit want to review my claim. They asked me for four months of bank statements and I sent them straight away from both of my accounts. Then they messaged saying that they want me to have a half an hour phone appointment and to provide evidence. I am worried as I was gambling alot on online slots. I have…
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Common Sense Prevails?
https://www.theguardian.com/society/2026/oct/15/trans-women-no-longer-to-be-placed-on-female-only-wards-under-new-nhs-england-guidance
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WCA + med 10 for universal credit
The appointee took my wca to fill it out in my hospital room as I had an appointment in the morning, along with sending them my med10 within 2 weeks in the free post envelope. Will I still get uc in November?
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Functional neurological disorder (FND)
Does anyone else have it? Confused how to self manage as NHS wasn't able to do much
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What Makes a Good Day Centre?
Larkspur Care has contacted the Cerebral Palsy Network. Larkspur have opened a specialised adult centre. They have deliberately sought to reach people across a wide geographical area because they want to hear a broad range of experiences, perspectives and ideas. Larkspur Care would like your input on the following…
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FND Functional Neurological Disorder
Hi everyone is there any other people here leaving with FND?
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Industrial Accident - any experience of claiming ?
IIDB, Exceptional Rate CAA and Constant Attendance Allowance (exceptional rate) Does anybody have any experience of claiming these ? My claim is extremely complex and involves being prescribed a drug by a military doctor, 36 years ago that has had a devastating ongoing effect on me - when I was not in the armed services !…
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Upcoming Events
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Scope and CP Sport Inclusive Sports Festival
Everyone should have the opportunity to enjoy sport. 🎾 Scope is partnering with Cerebral Palsy Sport to bring an Inclusive Sports Festival to Lee Valley Hockey and Tennis Centre on 27 October. It’s a chance for disabled people of all ages to try a range of sports, meet new people and enjoy being active in a friendly,…
- Nourishing families with cerebral palsy
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Northern Hybrid Cerebral Palsy Meetup
A meetup for adults with cerebral palsy who live in Northern England. Hybrid meetup for adults with cerebral palsy in Leeds. Join in person or online. Teams joining link sent after booking. This is a relaxed, friendly meetup for adults with cerebral palsy living in or around Leeds. This is a collaborative event with…