Scope’s Online Community
Discussion List
-
Accepting things you can’t change
hi Very long story short. chronic illness all adult life Worked full time until Hysterectomy resulted in life changing complications- 3 stoma bags. The hospital were awful / made me believe I’d recover etc - I never took legal action. 11 years on health is deteriorating still have the bags but I am stable . I can’t get…
-
Having issues I didn't expect with demand avoidance and toileting
Not fully sure where to start with this... This will seem largely focused on one issue but also there's a lot going on. I was diagnosed Autistic almost a month ago and I'm on the roller coaster post diagnosis. I've been in burnout since June. I quit my job a few weeks ago. However since diagnosis burnout has hit harder?…
-
Does Tech Interfere In Our Daily Life 🤨
I am someone that has always been a fan of tech for as long as I can remember, but the advancements in tech over the last 25 years alone has been astronomical. 🤯 I have each time my phone has been up for renwal, had the latest phone to benefit my daily life. But then on the other side it can have a negative impact, in that…
-
Hello new and overwhelmed.
Hello had terrible shoulder pain for the last year and neck pain. Found out I have severe bilateral forminal narrowing C5,6&7 and now a prolapsed disc as well. It's effecting my arms and left leg. Im never going to be able to do my job again as it's too physical but been there 20 years. Lost all my friends and probably…
-
Power cuts, powerbanks, Priority Services Register, fuse boards
Re the banner, do register, it's really easy. Did it a couple of weeks ago after a disaster which was really nothing much with hindsight but had me in a flat spin. On a fine sunny Friday morning the power suddenly went. No-o, you don't expect power cuts in August. I stuck my nose outside the front door of my flat and there…
-
Decision maker phone call after mandatory reconsideration request
Hi, I'm just looking for abit of help I recieved a random call yesterday from the mandatory reconsideration decision maker for my pip claim which I wasn't expecting at all after I had already recieved a letter to say they had everything they needed to make a decision. When I spoke to the decision maker she asked me if I'd…
-
Petition for housing in Haringey
While this is one individual, who sadly became disabled in a car accident, I lived in the same borough, and the housing story is familiar to me. In my case I was given 40 years on the waiting list unless my family through me out on the street. I didn't wish to be a 40something still living with aging parents if I could…
-
EHCP and PiP
I went through a very stressful time applying for pip, took me over a year, I used [website removed by moderator] to do my letters. It took 10 min and they posted it to the DWP for me think it was £30
-
Hi
My name is Sherralee and I live with chronic pain due to diabetic peripheral neuropathy. This is an invisible illness but devastating. I take a lot of medication. I would like to have some friends who also share my experiences. It is a lonely life I have and I’m sure there are others who feel the same way. I look forward…
-
Disabled hate crime
Hi my name is Daniel white on the 12th of July me my partner have been the victims disability hate crime by neighbour's its been recorded on southyorkshire police system and sheffield city council has disability hate crime and we applied for medical priority put a social worker letter in saying our current 2 bedroom house…
-
How will inheritance affect my pension credit, housing, and council tax benefit?
I am trying to find out if my housing benefit and council tax benefit will stop after inheritance. I understand for every £1000 over £10,000 pension credit calculates you as £2 a week income deducting this from your weekly pension credit. I am currently in receipt of pension credit guarantee allowing income of £325. If my…
-
Hi, my name is bruce0502!
Helow I am an Auto Electrician a powerful ali for electric scooter problems however I have a Greenpower Fastest I have solved the restricton of 8 MPH to 15MPH I think a little more because these people that make the laws don't live in the real World! If you are about to get attacked or mugged how the hell do you get away…
-
Gambling (spread betting)
Spread betting in uk is classes as gambling- can you gamble within the 3000£ investment and stay within the saving asset cap and spend your gambling winnings if they don’t take you over the 6000 saving cap. 3000 investment and 3000 gain/win but your doing this every month would this be allowed?
-
Capita n.i.
I had my pip coc assessment on the 24th August pip still haven’t received the report & capita told me on Tuesday it was in the final stages only to b told today it’s still getting worked on! Wud anyone have a rough idea how much longer?
-
change of circumstances PIP form hasn't left capita - any experience?
hi everyone hope u r all feeling ok today am feeling a bit stressed out as goin through a coc with pip..& it hasn’t left capita n.i.yet after nearly 5 weeks today i was told its still bein worked on!.. any experiences of this wud b helpful!
-
How to calculate Universal Credit Capital and COL payments?
Hi everyone, I'm just looking for some clarification on exactly how the capital calculation at the end of an assessment period works. Am I right in saying that you would get the total from all accounts and then subtract any work earnings, the Universal Credit payment itself, any PIP payment and any Child Benefit from the…
-
Just saying hello
Hello - I've just joined today. Feeling really low at the minute. Had a really bad year this year with death in family and threat of homelessness. just taking things day by day as you do.
-
Sports talk ⚽️🏋♀🏀🏃🏻🏈🎾🏊♂️
We talk a fair bit about Football on the community but does anyone follow any other sport? I know @Mary_Scope watches rugby, anyone else?
-
PIP application timeline (my experience)
Hi I’ve seen other members share their application timeline experience and it really helped me make my application, thank you. Here’s my experience. Sorry it’s a bit long but I hope there’s some useful bits. 12/02/25 - started application process using the link on the Govt website to see if I could apply online. Put my…
-
help with fault Greenpower 500
I found this group while looking for answers to my mobility scooter problems. I found some discussion re Greenpower 500. Is anyone any good at diagnosing faults? Thanks
-
Universal Credit LCWRA Rates
Hi all, Not sure if anyone can help me here, I'm not sure if I have been awarded the wrong amount for LCWRA but am having a bit of difficulty understanding the rules. My UC journal shows that on 1 April 2026 I reported a health change, with the change recorded as effective from 1 March 2026. This therefore means I did…
-
70 Up EPISODE 2 tonight at 9pm!
We'll see the final episode tonight which I didn't hear mentioned at the end of last week's programme…I don't usually watch ITV but no doubt it's been promoted on the channel. I hadn't understood why Bruce Balden appeared in the latest photograph but not interviewed last week so that mystery is cleared up. We'll need…
-
Tea talk
This discussion was created from comments split from: What are your concerns about a potential Digital ID?.
-
Anyone have any outcomes on the AR2 from selecting no change & been to tribunal?
This discussion was created from comments split from: AR2 light touch form for 10 year award.
-
UC review coming up. Is a loan repayment something to be concerned about?
Hi, my name is Russ. I have a UC review tomorrow. I have supplied 4 months worth of bank statements While I was working back in April, I took out a £4000 loan with my Bank.However, I realised it was too much and repaid the loan in full within 30 days. I have an early settlement letter to prove I returned the money. At the…
-
Electric wheelchair choice
I am permanently wheel chair bound and currently have a Pride Air2 electric one but I have started to lean to the right and my legs are splaying with my right leg going under the armrest which is very uncomfortable. Does anyone have any suggestions of a way forward?
-
Because you matter challenge. Starts today Tuesday 1 September 2026
I'm posting this 30-day challenge on behalf of Chrissie Henson, who has been in touch with Scope. and the Cerebral Palsy Network. Hi, I'm Chrissie. I am a person-centred therapist and author who also lives with Cerebral Palsy. I recently contacted @Richard_Scope as, over the last few months, I have set up a YouTube…
-
Little bit confused about carers element
Hey all, On the 10th August I updated my online DWP journal to confirm that I am have been caring for someone since May, for 35+ hours a week. I meet the requirements to claim carers element of universal credit. Within an hour I was given the status where I no longer have to look for employment. It's now a full month later…
-
Random music generator game 🎵
Today I learned that Halloween Techno is a genre of music! So I thought how about we all try and find the most unusual genres we can. Put 2 random words together that are somewhat linked to music - ballet garage, dustbin pop for example, and see what you can find! It doesn't have to be a YouTube link, it can just be a song…
-
"failed" PIP appointment, help
Hello, I was supposed to be having my assessment today but it ended up not going ahead because of some weird rules. For context, I have been trying to get PIP for years, but always declined, I decided to try again since getting my EDS and Autism diagnoses as those took a long time. One of the things I struggle with, is…
Categories
- All Categories
- 16.4K Start here and say hello!
- 7.8K Coffee lounge
- 123 Games den
- 1.8K People power
- 190 Announcements and information
- 25.9K Talk about life
- 6.2K Everyday life
- 445 Current affairs
- 2.6K Families and carers
- 890 Education and skills
- 2K Work
- 630 Money and bills
- 3.8K Housing and independent living
- 1.2K Transport and travel
- 676 Relationships
- 1.6K Mental health and wellbeing
- 2.6K Talk about your impairment
- 885 Rare, invisible, & undiagnosed conditions
- 950 Neurological impairments and pain
- 2.3K Cerebral Palsy Network
- 1.3K Autism and neurodiversity
- 41.8K Talk about your benefits
- 6.2K Employment & Support Allowance (ESA)
- 20.6K PIP, DLA, ADP & AA
- 9.5K Universal Credit (UC)
- 5.4K Benefits and income
Popular Tags
- Disability 518
- Housing 460
- PIP 324
- Family 308
- Labour Reforms 224
- FOF 220
- PIP Review 204
- Mary FOF 201
- March 2025 197
- ESA 166
- UC Review 153
- Disabled children 143
- Parents 135
- Discrimination 90
- DLA 75
- Research 69
- work 51
- DWP 47
- Council Tax 35
- Transport 29
- disabled people 29
- relationship 27
- Employment 25
- Friendships 25
- Social Care 24
Upcoming Events
- Nourishing families with cerebral palsy
-
Northern Hybrid Cerebral Palsy Meetup
A meetup for adults with cerebral palsy who live in Northern England. Hybrid meetup for adults with cerebral palsy in Leeds. Join in person or online. Teams joining link sent after booking. This is a relaxed, friendly meetup for adults with cerebral palsy living in or around Leeds. This is a collaborative event with…