Scope’s Online Community
Discussion List
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Hi, my name is danielle82! DLA tribunal. What can I do?
Good morning am looking for advice I applied for dla for my little girl 14/02/2024 to be told they didn’t make a decision on my everdance they went by the booklet to go to mr told no again now I have a tribunal the 8/09/2025 am really scared my 11 year old daughter as undergone 7 major operations in 4 years on perthes an…
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Hi, my name is Rachjono2014! Appealing against issues with my son's college transport, any advice?
Hi, I am looking for support or advice, my son attends an SEN college he has Autism and communication difficulties likened to Selective Mutism and toileting problems and was using minibus travel that was awarded but due to issues with him feeling threatened with other children talking at him, toileting issues due to…
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ADHD benefits for my child
hi guys I’m new to this so please forgive me if I do any thing wrong. My name is miv and my 15 year old daughter has just been diagnosed with adhd. She believes that she is entitled pip or whatever. Could some one please let me know if this is true and if so how to apply thanks for now guys xx
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Hi, my name is clare12311! I disagree with daughters award. It should be higher.
Hi,my daughter has quite a few issues as cerable palsy on autistic spectrum global delay no danger awareness!shes only on low mobility which i thinks wrong .
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World Cerebral Palsy Day. The Change I Want to See
I can still remember the day clearly. I’d not long turned 16 and there I was with my physiotherapist when they said: “It’s your last day with us today. Now you’re 16, we won’t be working with you anymore.” I’d done the standing frames. The casting – having my legs put in plaster to stretch my hamstrings. Missing time with…
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Going Cold Turkey On Vaping!
I've been vaping for about 2 and a half years now and I really want to stop! I want to get fitter, healthier, and better my mental health, so my plan is to just go cold turkey and avoid NRT (if I can)… I know it will be hard but I am determined to do it! I am going to also start running again, something which I have not…
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PIP appeal
I applied for PIP daily living and my application was refused, I then asked for MR and it was still refused. I appealed to the FTT and my appeal was refused also, I then appealed to the UT and it was refused, the UT said it was the FTT who should have changed the decision. I then appealed to the Court of appeal and it was…
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Sensory overload help
Hello, is there treatment or a service I can use to get help with sensory overload? Everything smells too strong, lights too bright, tastes too strong, too loud.
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Friendship Advice
So I've been in this trio for a couple years now (I'll call them E and M). We became a trio because we bonded over our disagreements with other friends (which looking back only worked because of my mask + the fact that I didn't want to become a target). I don't want to be in the trio anymore but I don't know how to go…
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Housing Advice
Hello, I wrote in the Journal two days ago. I am being evicted, every month I have a court hearing ""my life is a huge stress"" The housing advice and the GP came up with this together because not all my illnesses have been diagnosed (then they don't even exist) I have become completely deaf in one ear, the GP has not…
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Tech-forward CRT users ???
No clue as to what this means . . . the title? Comes from https://wheelchairs360.com/power-wheelchair-brands/ Found out in the end, this is for @Rosie_Scope "Complex rehab technology" and Google is not to helpful Cathode Ray Tube was answer.
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Hello/Check in
Hello, just wanted to say hello and sorry for the long break from using the forum, I have been having problems with my mental health and have been put on medication. I also had a fairly bad fall earlier in the year and had to have an injection in my upper thigh/hip 😕. I am doing a lot better than I was. How is everyone…
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'Snowflake generation'
Young people are often given a bad rap and I think every generation is compared to the ones before it. I found this article an interesting read: https://www.bbc.co.uk/news/articles/cqzrz0z4plk1o "Accusations that the young are a snowflake generation are wrong, the head of an independent review into mental health, ADHD and…
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Its about lwrca - worried that I'll be overlooked
I applied for lwc im struggling this year with my health i had to cut down on my work aswell. Im only working 14 hrs a week. I cant walk more than 50 metres due to herniated disc. I sent dwp my mri scan report gp report and a neurosurgeon consultant report and today ive been told im fit for work. What do I do now? Ive…
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Carers element backdate refused
Hi can I ask a question, I applied for carers element last week for my partner on universal credit, she's been getting pip since 2022 but i didn't know i could apply for carers element until last week, universal credit sent me a letter today saying they won't backdate it because saying I didn't know isn't a good enough…
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Virtual walking tours, somewhere interesting?
I've just been trying out our new super-fast broadband, and have discovered lots of videos of virtual walking tours. So far today I have been strolling along the Barcelona beach front, stepping between lots of sunbathers by the waterfront in Copenhagen, and hiking through the Arches National Park in Utah, all from my…
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Backpayment of lwcra
I have had a letter added to my journal saying my backpayment is authorised and sent out how long does it take to go in. Tia
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Capita Issues
Hello, My sister has a severe learning disability and we were advised to apply for PIP for her. We sent in the form, had an over an hour long conversation with Capita (with my Mother present as my sister’s speech is hard to understand.) We also had a letter from our GP surgery detailing her difficulties. This morning I…
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PIP ESA and carers element
Hi All, I am on PIP, enhanced for both elements and CB ESA, limited capability for work group. My brother looks after me and has been advised to claim the carers element of UC, but we can't find out if it will impact my PIP or contribution based ESA Can anyone help?
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Looking to speak with people who take beta blockers for anxiety
Hi, I wanted to reach out as a journalist who is currently writing an article on the use of beta blockers to treat anxiety disorders as part of my final Masters project. I am looking to speak with people (apart from myself!) who take or have taken beta blockers to help with their anxiety. If there is anyone who would like…
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Access to Work: online claiming stops after 9-12 months, anyone else?
Hi all, I'm self-employed and have an Access to Work grant that includes a three-year ChatGPT subscription (used as a work aid for my disability). For the first few months I claimed back the monthly cost online with no fuss. I've now been told that after nine months you can't claim online any more. You have to fill in a…
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Celebrity Traitors 2026
It's back! And there's an extra long episode tonight (1st October) at 8pm to introduce everyone. Last year's was brilliant so I've got high hopes for this one. This year's line up includes: Amol Rajan – Journalist and Broadcaster Bella Ramsey – Actor James Acaster – Comedian and Podcaster James Blunt – Singer/Songwriter…
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Toast 🍞
Which toast is the correct level of toastiness for you?
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What do you call these insects?
What's this called? Apparently there are all sorts of regional names for them and not everyone grew up calling them cheesy-bobs. Who knew?! Did you have a name for them beyond their normal scientific name?
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PIP REVIEW WAIT TIME?
Hi I've already written another post on my review, reasoning was change of circumstances. Sent the form off on the 4th of August 26 and received a text on the 7th to say form received. My partner rang today to get an update and to update of a higher strength medication being added, they have said that the form as been…
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Menopausal
Good morning one and all.I was just wondering if there is any other lady out there that is going through or has been through this absolute terrible menopause stage.I myself feel like I'm dying it's terrible.The hot sweats,the shakes,heart palpitations,dizziness,not wanting to eat.I literally went to hospital the other…
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Holiday company/Gay Mens Community and Wheelchair Accessible Venues
I have been a member of the Edward Carpenter Community for over 30 years and in 2017 I became a part time wheelchair user. I need to be in my chair the majority of the time to manage spinal and neurological symptoms. The Edward Carpenter Community is a ltd company, that puts on retreats for gay men. We pay to attend and…
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Oldest thing you own
What's the oldest thing you own? Other than some old photos of my grandparents which are probably around 70 years old, mine is probably my car 😅 It's an 04 plate and still running fine so I refuse to upgrade it!
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Thames water waterhelp
does anyone have experience of this? If your net income is low, they put you on a social tariff. do they count all people in house- not just bill payer? My households net income is small, but we have savings - which we are going through obviously. Can anyone clarify please (not to be confused with Thames water watersure,…
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Tenancy agreement request
HiHi all.im currently in the middle of a universal credit payments review. I submitted my bank statement and had the follow up call yesterday. I was asked to clarify 2 payments which i did. I have just spoken to my private rent landlord and he said to me.did you receive the tenancy agreement you requested. I have not…
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Upcoming Events
- Nourishing families with cerebral palsy
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Northern Hybrid Cerebral Palsy Meetup
A meetup for adults with cerebral palsy who live in Northern England. Hybrid meetup for adults with cerebral palsy in Leeds. Join in person or online. Teams joining link sent after booking. This is a relaxed, friendly meetup for adults with cerebral palsy living in or around Leeds. This is a collaborative event with…