Scope’s Online Community
Discussion List
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"This Is As Good As It's Going To Get".
https://www.theguardian.com/commentisfree/2026/aug/20/hot-summer-wet-winter-welcome-to-the-age-of-climate-whiplash
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Watch: Seven GCSE exams, five months, one determined teenager
From the BBC Secondary school pupil Patrick McCabe, 16, has told BBC Breakfast that the wait for his GCSE results on Thursday is "terrifying". McCabe has cerebral palsy and completed exams in seven subjects over the course of five months using eye-gaze technology - an achievement celebrated by his friends and teachers at…
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My Successful PIP Appeal – What I Learned & How I Prepared and how £20 helped me win!
Hi everyone, I wanted to share my PIP tribunal experience to help others who might be going through the same thing. I was initially awarded 0 points for both daily living and mobility, but after appealing, I was awarded Enhanced Daily Living and Standard Mobility for 5 years. The process was frustrating and exhausting, but…
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Games
monopoly dominoes
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UC claim - scared
Hi, I am very worried because my partner made a mistake on his UC claim. He applied for UC as a single person but we live together. Our finances are seperate, he does not receive any support with housing as I own my flat and he is not named on anything. I am really scared he could go to prison. When he moved in I cancelled…
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Using Capital/ Reclaiming UC
Hi, earlier this year I was granted a 6 month capital disregard in the funds from the sale of the home I lived in. I have been searching for an appropriate home since and had to move in with family (the house had to be sold as it had belonged to my late Mum, it had been my home for 4 years). I had secured a small mortgage…
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Hi, my name is belfast1962! Carers allowance for myself?
I live alone i dont have a carer i get pip and universal credit top rate can i get carer allowance for myself
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Hi, my name is keishac! Looking for housing
I’m looking for a studio massive or 1 bedroom lower ground for both do you take people on uc and pip I need a massive room because of my mobility
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Beat the heat - Tips on staying cool
With the UK about to go through a heatwave, I thought it would be good if we could share some tips on how we all stay cool. Here are some tips on how to handle the heat effectively: Trap the Cool Air: Keep windows, curtains, and blinds closed during the hottest parts of the day. Only open them in the early morning or late…
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Branching out now to find support groups
My husband has PPMS. I have ME and our two kids have Autism and ADHD. Just branching out now to find support groups.
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UC Migration Payment Issue
Hello my name is Leeanna and I am in the middle of transferring over. I received around £960 ESA every four weeks and now I get £252.20 ESA and Universal Credit is £162.22 every fortnight. It is £828.85 month but based on their calculations I should be getting £1042.38 as I have transitional protection this is my…
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Do you have a period and use a wheelchair?
Do you have a period and use a wheelchair? Volunteers needed £10 voucher for a 1-hour interview What is the interview about? Exploring wheelchair users’ experiences of exercising whilst on their period. Who can take part? Anyone who lives in the UK and is aged 18 years or over. Uses a wheelchair for at least half of their…
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Claim Review asked for with housing costs. Help...
Hi, This is difficult for me to discuss but I need support. I have been asked for the dreaded 4 months bank statements. However, there are 2 issues quite difficult to discuss… Ill try. I have a gambling issue. however, this is not without its controls. On any account, I have put on spending limits (usually £20 per day).…
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Hi, my name is yazz1701! Still waiting for LCWRA decision
I sent my uc50 form for LCWRA last year beginning of September 2025 and still not heard from them, no letters or phone call, keep asking my Uc coach any news but their said nothing on system yet just be patient how long does it take
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Original equipment manufacturers.
Many post deal with wheelchairs and scooters both with and without motors. I have noticed that some equipment has been branded or rebranded. The most obvious example is car makers, you'll have seen Mazda with Ford and Peugeot with Vauxhall. Whilst shopping for the powerchair we noticed that several retailers had "almost"…
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Inheritance/ impact on UC/ Mortgage
Hi I am aware of all the UC guidelines on this I am just so anxious. I will try to summarise house sold in April, funds have 6 months disregard, staying with dad trying to find a home to buy difficult due to exhaustion I receive LCWRA UC, standard element and transitional protection plus PIP (I know (PIP is not means…
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universal credit and pip backpay
Hi can anybody help me please, I won my pip tribunal in March 2025, was on ESA and in the support group but had to go on to UC. We went to the job center and took bank statements etc. and they were told that I got back payment from my pip tribunal and a lady rang a week later and we told her about my money which was money…
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Mobility car information
Hello I wonder if someone could help me please. My car is due to run out March 2027. Dose anyone know if you can keep the car you have currently for longer? My first 3 years in having a mobility car and not sure how it all works. I really like my car and dont wnat to get rid of it. The guy said when we got it that they…
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DWP Carers' Allowance - HELP!
Hi, For the years I have received CA, it's been four weekly. However, since living on my own (start of July), my payments became every 2 weeks due to 'admin' error. However, it has now been 17 days since I was last paid and there isn't any signs of payment. I will call CA today but it is like speaking to a brick wall, the…
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Hello New Members😄
A big welcome to the new members that have joined the community over the past couple of days🤩 @tinybash @Brianmorgan1 @ElephantShoes8 @Edna90 @oliveuka124 @chloedecker @SofiaPH @dmc_21 @bazgola @SJaye92 @Paul0811 @nellienellie @Jenniferb70 @sasher @nh25UCL @chelleb1971 @DeeGee1980 @olayinka_inclusion77 @Anabela…
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Diagnosis
Hello, what can I do, the GP does not give a diagnosis letter, not just me, he does not give it if an office asks him to give a diagnosis in my name, he acts like he does not understand and does nothing. I often have to wait 10 days or two weeks for medication, I do not change GPs, because where I live this is the third GP…
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Pip review and capita
Hi everyone I’m looking for some advice regarding my PIP review. I previously had Enhanced Daily Living and Enhanced Mobility and completed my review form. After a telephone assessment with Capita I requested a copy of the PA4 report before a decision was made because I was concerned about a number of inaccuracies and…
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Hello I'm a carer
Trying find out about uc and keeping medical side of uc open before being taken of it because of inheritance Regards Paul
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High Quality "Wheely Walkers"
My mother needs a new wheelie walker. She has a basic three-wheeled one (I personally consider the three wheel ones to be totally unstable and almost dangerous) and did not like the four-wheeled one that I bought her a few years ago. It seems to me that most of these walkers that are sold by disability shops are really…
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PIP light touch review.
Hello, I am an appointee for my daughter. 10+ years ago she was moved from DLA to PIP, this resulted in a reduction in benefits. She received 8 points in communication and no other points. I did try an over the phone mandatory reconsideration after reading the assessors report but got nowhere. I did not go through with an…
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Unpaid carers
The Prime Minister missed an opportunity to talk about "unpaid" carers when he made his speech on social care on Thursday ! https://www.gov.uk/government/speeches/prime-ministers-speech-on-social-care-29-july-2026 You are all probably fed up with hearing how my wife has cared for me for over 20 years without a single days…
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Hi, my name is scorrrp!
Hi everyone, I’m hoping someone here may have been through a similar situation and can offer some advice, because I honestly don’t know what else to do. I am a social housing tenant in London and have been dealing with serious housing disrepair issues for many years. These include electrical safety concerns, damp and…
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been offered Methotrexate for RA, PA and OA
Hello and good morning I have just been offered Methotrexate for RA, PA and OA. I am looking to find out more so I can do some 'sums' and work out what is looming up for the journey ahead! Phil
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Reasonable adjustments
Hello everyone! I'm new and posting here for some advice. I work in a UK setting which provides children's holiday clubs. We have some children who are autistic with a PDA profile who would like to attend. Among other adjustments their parents requested that they use a completely different software to the one planned and…
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Methotrexate
I just wondered if anyone else had been on this drug. I was taking methotrexate for six months and all of my body hair stopped and gradually fell out. The hospital put t me on baracitinib to counteract the problem which has not worked, I mean no hair growth at all apart from my head. Absolutely smooth as I was born. I…
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Upcoming Events
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Scope and CP Sport Inclusive Sports Festival
Everyone should have the opportunity to enjoy sport. 🎾 Scope is partnering with Cerebral Palsy Sport to bring an Inclusive Sports Festival to Lee Valley Hockey and Tennis Centre on 27 October. It’s a chance for disabled people of all ages to try a range of sports, meet new people and enjoy being active in a friendly,…