Scope’s Online Community
Discussion List
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Bedroom tax with a carer staying over 4 nights a week
This discussion was created from comments split from: Bedroom Tax.
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New member welcomes! 👋
Hello and welcome to those who joined us yesterday: @bona8101, @cathrynerogers, @cheering, @debranott, @GoldenSilence, @Greis, @Joseph7, @justdisabled, @law, @liztwo, @mansion, @MistyAvidreader8, @reney, @Rose23x, @shaz27, @smason2026, @Toto1972 and @widgersdad! I've seen some of you posting already so I hope you've been…
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I've just requested to close my claim for UC online. How long ...
… does it take for them to update my record. I get really anxious over things that are unfinished. I closed my ESA with no drama. Many thanks
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🛠️ Community Technical Issues
Hi everyone! As you may have noticed, the community was down for some time overnight and into this morning - 24th and 25th September. We're experiencing some technical issues at the moment and we're in contact with an outside team to get these fixed. While we're back up for now, things may look a little different on the…
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Women with cerebral palsy are still being excluded from essential healthcare
New research from the United States has added powerful evidence to something women with cerebral palsy in the UK have been saying for years: access to routine women’s healthcare is not equal. A large U.S. study published in 2026 looked at healthcare records for more than 138,000 women with cerebral palsy, compared with…
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Hello from the USA.
I'm a seventy-five year old, sixty percent disabled veteran. I am fortunate I have a good support person. I live on the beach on the west coast in Oregon for health reasons, my body reacts to the pollution and this is the only place that keeps the problem to a minimum. I was an CEO/Engineer of an Internet Service Provider…
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Stock ISAs
I've heard about stock ISAs and I had a look at them. I like the interest rate however I don't want to lose any money. I've seen people with good stock ISAs but I don't know where to start or know much about it. Is there a way where I can have someone who knows about stocks and tell me which stocks to invest in?
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Hi, I'm joannacrittenden! What do I do for money when child element stops?
I have a disabled 19 year old. I claim universal credit. She receives high pip level. & mobility. I receive carers allowance for looking after her. Now she has turned 19 the child element of UC stops. She is not ready to claim in her own right and doesn’t finish college until July next year . What do I do for money? Is…
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Cerebral Palsy Teens UK Entertainment Night!
Join us for the Cerebral Palsy Teens UK Entertainment Night 2026! Tickets going fast ‼ Get ready for a fun evening: the Cerebral Palsy Teens UK Quiz, games, a human fruit machine and more - plus food! Evening open to everyone (this is a fundraising event) - i.e. the public, family, friends, as well as service users…
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Child element Universal Credit
Although I have declared that I have a child on my Universal Credit, I am not receiving that part of payment. She is currently 17 and is at college. Does anybody know why I may not be receiving the child element?
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New Member
Hello I have recently acquired a new disability called dropped head syndrome, where your neck muscles are too weak to hold your head up straight. It has improved a bit with physiotherapy, but I still can't keep my head up straight properly and its noticeable. I have become very depressed because I always had good posture…
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UC review
Uploaded bank statements, but this month's has not been generated yet, it's the extra 10 days, not due for another 2 weeks, should I ring them, printed these ten days off but they won't except them because they are not bank generated!!!!! I have been on UC for six months is this normal to have a review this quick, The only…
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Can judges make end-of-life decisions?
A friend on mines her son has suffered a brain injury, which left him disabled, but he is still aware and can communicate through his eyes & reacts with his tongue etc. Tye court has ordered his unaliving but stopping hydration & nutrition. Is it right for a judge to determine death?
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Closing my claim if I have additional support marker.
Hi, I'm claiming ESA, UC and PIP. I've decided to take early retirement. I was speaking to CAB about a different benefits query. She indicated that she thought I may be an additional support case as I don't get pursued to look for or to prepare to go back to work. In the five years I've had these benefits, I've only had to…
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Not claiming future inheritance
Hello All - I am currently claiming Universal Credit with LCWRA element due to poor mental health. My mother passed away earlier this year. I have been left a share of her house in her will - my share will be under £15000. The solicitor fees/estate costs (probate is about to start - house sale - leasehold problems) are…
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I dont know what I expect
Hi. I'm here because I asked chatgpt for places for mental health support and this was the result. I dont know what I expect to achieve. Maybe just somewhere or someone to chat with. Maybe that would help, maybe not. Basically became disabled a couple years ago, wheelchair users now. Relationship ended as a result.…
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Bedroom tax
Can someone help me please, my son has adhd, asd and sensory processing issues, I have a 3 bed house, I use the spare room as a sensory room for him and for someone to stay when I need a break as my health isn’t good it’s also used when my other 2 children come and stay 18 year old girl and 14 year old boy, I told u.c back…
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Would you be good on a Jury?
I've recently been watching the new series of The Jury on Channel 4. It's a mock-trial based on a real murder case. Everyone is played by actors except for the jury. They are presented with the evidence just as you would be in a real trial and have to decide whether the defendants are guilty or not guilty. I'd recommend it…
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Maths question
If you were asked to do the sum 17 + 18, how do you get to your answer? What's the process in your mind? Do you add the tens first? The digits? I know maths isn't everyone's cup of tea, but even if we all get the same correct answer, the way we get there seems to vary a lot and I find that really interesting. So how do you…
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New Here
Hello I'm Michael. I am a writer and published author. I have CPTSD and last year was diagnosed with Ulcerative colitis. I joined to listen via reading other members experiences and share my own.
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Mandatory Reconsideration Decision
Good Evening All Hope you're all doing well. I have a genuine question RE: Mandatory Reconsideration Decision. I undertook my assessment with Capita around May 2026 this year. I scored zero in everything which was a disgrace. I lodged a mandatory reconsideration around July 20th this year via post. I was in the process of…
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LCWRA Assessments
Hi, I am desperate and need some advice on what my options are. I have received my assessment appointment 9 months after I applied. This was cancelled last minute without a reason. I have received the next one fairly quickly. I have been "checked in" and about 15 minutes past the appointment time, I received a call telling…
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Am I being a big baby?
I've been back at work for just over a week now and I feel like quitting. I can't because I need the money and have responsibilities but it's they've been awful. Since I went back they're expectations have been far higher than they were before and I'm exhausted. I've always had really good performance meetings and…
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Cerebral Palsy PC user needs
Trying to help a friend out. He is a able to use his computer with the aid of heavy duty buttons/paddles operating specialist software (left right and up down buttons on a grid) programmed to undertake various PC tasks. He also uses a Possum Primo to turn on TV etc. He cannot use his upper limbs for anything needing fine…
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PIP increased at review. Is it possible to get it backdated?
Hello all, I’m posting here because I’m hoping to get some advice on a matter regarding PIP and wonder whether anyone has been in a similar situation. I was awarded PIP about 2-3 years ago after 5years in hospital and received standard for daily living. I eventually called after getting settled into to my supported living…
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CURRENT PIP EXTENSION LETTER WAVE - what length extension did you get given
so most of you already know that a wave of pip extension letters to current pip awards due for review started being sent out this month (June 2026). The majority seems to be 2 or 3 year extensions but I have read of some 4 year ones (which I presume are reserved for the 10yr rolling pip awards but if someone could confirm…
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Universal credit and ESA
Hello, can someone please help me? My ESA ended on 31.08.2026, and I received £42 on 02.09.2026 as my final ESA payment. My UC assessment period is from 29.08.2026 to 28.09.2026, and I am wondering how UC will calculate this in my assessment statement. Will UC take the full usual ESA amount of £414.05 into account for this…
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Young family members
I have two grandchildren (16 & 20) who are in my opinion unemployable. Both receive PIP for anxiety and depression. Both are not interested in starting the work cycle. One asked if working meant 8 hours a day - 5 days a week. Both are quite happy to just enjoy their leisure time with their benefit income being topped up by…
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DWP bringing up appointee after 3 prior independent claims
Hi, I am currently claiming for UC as I'm looking for work after returning to the UK after time abroad. I was made redundant over a year ago and I did make a claim after that, but I cancelled it afterward as I realised I exceeded the capital limit of £16k. That said, because I used a different email address to make that…
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Premier Inn - non accessible
My wife and I are booked in to a Premier Inn in an accessible room - for a few days next week - we are going to visit my wife's family… we have stayed at the particular hotel before… however I just noticed on the website "All rooms at this hotel are accessed by stairs". My first thought - this must be a mistake - we have…
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Upcoming Events
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Northern Hybrid Cerebral Palsy Meetup
A meetup for adults with cerebral palsy who live in Northern England. Hybrid meetup for adults with cerebral palsy in Leeds. Join in person or online. Teams joining link sent after booking. This is a relaxed, friendly meetup for adults with cerebral palsy living in or around Leeds. This is a collaborative event with…