Scope’s Online Community
Discussion List
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Hello New Members😄
A big welcome to the new members that have joined the community over the past couple of days🤩 @tinybash @Brianmorgan1 @ElephantShoes8 @Edna90 @oliveuka124 @chloedecker @SofiaPH @dmc_21 @bazgola @SJaye92 @Paul0811 @nellienellie @Jenniferb70 @sasher @nh25UCL @chelleb1971 @DeeGee1980 @olayinka_inclusion77 @Anabela…
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Diagnosis
Hello, what can I do, the GP does not give a diagnosis letter, not just me, he does not give it if an office asks him to give a diagnosis in my name, he acts like he does not understand and does nothing. I often have to wait 10 days or two weeks for medication, I do not change GPs, because where I live this is the third GP…
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Pip review and capita
Hi everyone I’m looking for some advice regarding my PIP review. I previously had Enhanced Daily Living and Enhanced Mobility and completed my review form. After a telephone assessment with Capita I requested a copy of the PA4 report before a decision was made because I was concerned about a number of inaccuracies and…
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Hello I'm a carer
Trying find out about uc and keeping medical side of uc open before being taken of it because of inheritance Regards Paul
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High Quality "Wheely Walkers"
My mother needs a new wheelie walker. She has a basic three-wheeled one (I personally consider the three wheel ones to be totally unstable and almost dangerous) and did not like the four-wheeled one that I bought her a few years ago. It seems to me that most of these walkers that are sold by disability shops are really…
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PIP light touch review.
Hello, I am an appointee for my daughter. 10+ years ago she was moved from DLA to PIP, this resulted in a reduction in benefits. She received 8 points in communication and no other points. I did try an over the phone mandatory reconsideration after reading the assessors report but got nowhere. I did not go through with an…
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Unpaid carers
The Prime Minister missed an opportunity to talk about "unpaid" carers when he made his speech on social care on Thursday ! https://www.gov.uk/government/speeches/prime-ministers-speech-on-social-care-29-july-2026 You are all probably fed up with hearing how my wife has cared for me for over 20 years without a single days…
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Hi, my name is scorrrp!
Hi everyone, I’m hoping someone here may have been through a similar situation and can offer some advice, because I honestly don’t know what else to do. I am a social housing tenant in London and have been dealing with serious housing disrepair issues for many years. These include electrical safety concerns, damp and…
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been offered Methotrexate for RA, PA and OA
Hello and good morning I have just been offered Methotrexate for RA, PA and OA. I am looking to find out more so I can do some 'sums' and work out what is looming up for the journey ahead! Phil
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Reasonable adjustments
Hello everyone! I'm new and posting here for some advice. I work in a UK setting which provides children's holiday clubs. We have some children who are autistic with a PDA profile who would like to attend. Among other adjustments their parents requested that they use a completely different software to the one planned and…
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Methotrexate
I just wondered if anyone else had been on this drug. I was taking methotrexate for six months and all of my body hair stopped and gradually fell out. The hospital put t me on baracitinib to counteract the problem which has not worked, I mean no hair growth at all apart from my head. Absolutely smooth as I was born. I…
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Reform UK to scrap PIP, UC health element
On Monday next week, Reform UK will publish the most radical approach to slashing the welfare state in British history: https://www.bbc.co.uk/news/articles/cz977nxww1jo Reform will scrap PIP, health elements of UC and replace them with a "Health Security Allowance" that will only be available to the most "severe, enduring…
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Good and Legal ways to increase your income when you receive disability element?
Also maybe PIP What can we do to increase our money without breaking any rules?
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Minister backs calls for better support for people with cerebral palsy
A government minister has backed calls to improve specialist support for people with cerebral palsy. Alison Thewliss, Minister for Community Care, visited the Cerebral Palsy Scotland therapy centre in Glasgow to meet service users, families, and specialist staff, and to hear first-hand about the importance of lifelong,…
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Pip
hi everyone , when I come out of hospital and tell pip will they send me a pip review form or just continue my payments ?
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UC REVIEW
I am really worried about the UC review. I have a money coming on from people I have lent money to and who have paid it back. Also my boy friend is helping me pay some of my debts! how will this go down with the review?
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Weird day
So a man who lives opposite me who ive only spoken to once to say hello to has been knocking on my door recently (.caught on my ring doorbell).He doesn't use the bell but just knocks on the door.Anyway today I decided to answer to see exactly what on earth he could want.THIS is how the conversation went ME:"Hello?. HIM "Hi…
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SUV Tyranny
https://www.theguardian.com/commentisfree/2026/aug/15/suv-normal-family-cars-roads-supersized-consumer-choice I would like to tax SUVs off our roads, especially those monstrous US style 'trucks'.
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Careco Bad Review By A Disgruntled Old Man! Pressure Selling?
I hate complaining and leaving bad reviews, so this is more of a warning than a moan about sales staff getting paid commission and being quite pushy at Careco. I have used various mobility equipment for over 20 years and every time I give any of the ‘big boys’ a chance I regret my decision. In this case its Careco. It…
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Appeal question
hello everyone i applied for pip but only received 6 points for Daily living and 4 for mobility I did a MR and provided further evidence and after speaking to a Decision maker confirmed that it still remains unchanged. He himself may have not been the original decision maker and said do an appeal and suggested that i may…
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Family bought car for me
hi so I have a question, about 17 months ago I needed a bigger car so I traded in my old car 16 plate which I got by finance and gave it to a private seller. For a newer 2020 plate. My family gave the guy cash on top of exchange value. Car is worth between 12-16k. My family gave him 8k in cash as he wanted cash, i believe…
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Small luxuries
What small luxuries do you enjoy? For me it's a takeaway once a month. My mum's is her fancy Hotel Chocolat hot chocolate she treats herself to each Friday. One of my sisters buys herself a small bunch of flowers every other week. Do you have any small luxuries you treat yourself to?
- For what its worth.
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This Story Disturbs Me
I attend a men's mental health peer support group called Andy's Man Club. I started attending in 2023 and I usually attend every week. Anyway, a fellow member and someone who I have a huge amount of admiration, love and respect for told us about a situation involving his visit to his sister in-law's home. His sister in-law…
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Join us at the Ffit Conwy Adapted Wellbeing Inclusion Event.
Are you looking for services, support and solutions to help overcome barriers to living a healthy, active lifestyle? Join us at the Ffit Conwy Adapted Wellbeing Inclusion Event on Thursday 27th August 2026, 10:30am to 1pm, held at the James Alexander Barr Tennis Centre, Eirias Park, Colwyn Bay, LL29 7SP. This event is…
- Hi my name is becky
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'People don't expect disabled people to have sex'
Image source, Tara Wilburn Photography Image caption, Dateability - a dating app for the disabled community - has produced its first wedding between Colin and Kaci LaFon By Rachel Candlin BBC News For anyone searching for romance these days, modern dating apps have revolutionised the way we go about finding a partner.…
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Hello
Hello everybody
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Hi, my name is sasher!
Hi
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Hi, my name is Anabela!
Hello to everyone in this group.
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Upcoming Events
- Nourishing families with cerebral palsy
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Northern Hybrid Cerebral Palsy Meetup
A meetup for adults with cerebral palsy who live in Northern England. Hybrid meetup for adults with cerebral palsy in Leeds. Join in person or online. Teams joining link sent after booking. This is a relaxed, friendly meetup for adults with cerebral palsy living in or around Leeds. This is a collaborative event with…