Scope’s Online Community

Do I need to let UC know that I'm having blood tests, and hospital referrals to a rheumatologist again.or wait until I have the results. Not sure if I be on a waiting list, like last time. Also I'm having talking therapies for anxiety about leaving the house, going into town

hust joined today snd want to say hello to all

Hello I'm really looking for some help and advice ..We are a family with 2 twin daughters with complex needs who are 6, and a son who is being tested currently for autism who is 10.My partner and I have recently secured a lives with order for all 3 , on a 50/50 basis. My ex wife and I are separated so share care , I have…

on new models their is no swich to change it to 15mph

Hi. I've had symptoms of peripheral neuropathy since 2011, only in my feet (pain, numbness, and pins and needles). But the last two months the numbness in my feet has increased, and the pins and needles have advanced to my calves. In the last two months I also have a new symptom of burning in my feet and calves. Like a…

Apologies if someone has already shared this, I've had a busy few days and have not been around. Earlier this week the DWP announced that all PIP and Work Capability assessments will be recorded from 29th June 2026. So anyone with an upcoming PIP or Work Capability assessment will have them recorded. One thing that is…

Hi everyone my name is Jade, I am 30 years old. I have quadriplegic cerebral palsy, tremors & other health problems. I wanted to go make friends and dating but I was worried about where to go as I don't want to be taken advantage of or be in any kind of danger. So does anyone know any particular dating sites which are safe…

I thought I'd be watching alone again but in shocking news my teenager has said she'll be watching with me. I'm certainnn it has nothing to do with her asking if her football-loving boyfriend can come over too 😅 A win is a win though and the more the merrier! Who else is watching the England match tonight? It's one of few…

Hello. I've received my PA4 assessment report, and need advice. It recommends 8 points for daily living, and 0 for mobility. I believe this will give me Standard Daily Living for PIP, if the decision maker rubber-stamps it. However, I think I should have Enhanced Daily Living, and perhaps also Standard Mobility. So I need…

I had to take a short train journey to the next town today, it reminds me every time why I avoid it where possible. The outbound train was a two carriage wonder, so small that on driving up the ramp, there is no room to turn around to come off again at the next stop, and the sliding doors are ridiculously narrow, so much…

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Hi, we are struggling to run 2 cars so are keeping my partners car as it’s newer and more reliable. Can I use my tax exemption on her car as I will no longer have one.

hi. I’m in the position as one of the other members. My son has autism, adhd, sensory processing disorder and borderline learning disabilities. He is due to leave school on 23/06/2026 and turns 19 on 21/07/ 2026. I work part time term time to work around my son’s school/ college and heavily rely on the ice we receive for…

I’m preparing to return a PIP2 form and want to check whether this format is likely to be accepted. I plan to send back the original paper PIP2 form, signed and dated. In the answer boxes I would write “Please see attached typed response.” I would attach a typed response document which follows the same question order and…

https://www.bygonely.com/before-and-after-photos-world/

hi everyone i have been waiting for my pip review forms as my award is due to end june 2027 so its about now the dreaded forms will come but i checked online to request proof of of my benefits ie pip and they have extended my award till june 2030 they had recently done it from 17th of june this year so award was 2024 till…

As the title implies, DWP have decided to just not pay my pip. I've had it for a few years, but with an appointee, and after the apointee was removed, pip was not suspended or cancelled, but they just haven't paid it this month. What should i do? I would call but i hate phone calls and i'd probably get better advice from…

Hi everyone, I wanted to write a personal message about something that has been weighing on the community team for a while. We know how much this community means to many of you. For some people it is a place to find support, share experiences, talk through difficult days and speak with others who understand. Because we…

I would like to check my PIP online account

Hello to everybody here , Please , can i just to write here that i would like to wish everybody a peaceful day and the evening please Please take care of yourself as best you can Please be safe Please stay safe in this hot weather Please stay hydrated Thank you very much Kind regards to everybody, and best wishes

How do others manage, or what helps you get through when you feel your needs are seen as too much by others? I’ve been trying to get support, but even support organisations have been unable, or unwilling, to provide the adjustments I need to access their support. I know my needs are great, but I can’t help that. I’ve tried…

I know so many of you will relate. A decade ago I had freshly turned twenty years old and was full of ambition, I had so many plans and such a drive to do and be. Then I became disabled, and suddenly I wasn't as physically able, some days were very bad, neurological symptoms would flare up constantly. But the ambition is…

I went to see a neuro about my eye problem I was having. I’m 40 and I haven’t seen a specialists since I was 4!!!!! Anyway.. I’m having a lot of pain in my hip and falling over a lot. I’m under no one…. anyway I seen this neuro for my eye and he said he would be happy to talk about my cerebral palsy!!!!! Yay !!!!! Finally…

I have a 17 month (15 month adjusted) prem baby boy who is likely to have CP and going through the motions of physio and OT and hoping so much that we have minimal impact on his abilities to move independently but only just sitting and rolling : (

It is Disability Pride Month. Disability Pride Month is about recognising disabled people as a community with our own history, identity and rights. It is not about pretending disability is always easy or asking people to celebrate pain or exclusion. It is about rejecting shame, challenging ableism, and making sure disabled…

Been keeping a positive spirit lately, It was tough hearing I had breast cancer in my left breast. All started with me noticing a lump that did not feel right at all, this was 6 weeks ago. They did get the lump out surgically and took it all, was in the starting of it. Good news it was caught early. They said it was the…

Been reading awards being extended my husband has a 10 year ongoing award issued sept 2016 are these ongoing awards also being extended due to backlogs

Hi everyone, I'm Harini, an MSc student at UCL. I'm doing research on how fire crews could better understand and support wheelchair users when they arrive at a fire in a residential building. When a fire crew arrives, the first minutes count. Right now they often have little or no information about what wheelchair users…

Hi everyone. I had my PIP renewal rejected from July this year, so I applied for mandatory reconsideration. This week I had the outcome and surprise surprise that too has been rejected. I have now applied for a tribunal hearing. Just wondering what sort of time scale I should expect and also is there much chance of success…

Hi . I have received a letter stating my 4 year award ( enhanced for both ) is to be extended by one month to June 2027 and that they may extend it again . Is this because I am due to retire in July 2027