Scope’s Online Community
Discussion List
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Waiting for LCW to be reviewed. They are requesting fit notes???
Hey, All Hope everyone is ok. Just a quick question to anyone who might know. I have been in LCW since 2022. I recently had some health changes and spoke to my coach about them. She told ne to ask them how long would it be before I am re-assessed. I informed them of changes to health via my journal. They wrote back to say,…
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Hi, my name is Gire!
Hello everyone .My name is Gire l recenly joined this platfom.
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DWP confirms starting work can trigger WCA and PIP review
From the Benefits and Work site https://www.benefitsandwork.co.uk/news/dwp-confirms-starting-work-can-trigger-wca-and-pip-review
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We want to talk to parents!
Are you pregnant or do you have a little one under 3? Do you have a learning disability? We would like to talk to you! Take part in an interview about a NEW questionnaire made for people with a learning disability Tell us what you think Get a £20 voucher to say "thank you!"
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Is it possible to get financial help with bills
I am currently unemployed, and paying my regular payments is a real challenge. Does Scope offer any any grants for that ?
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The shape of things to come ?
A worrying article from the BBC. 'Emergency handbrake' needed on sickness benefits, says Tony Blair think tank - BBC News https://share.google/VBvJEltLWoHDn1AeA
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New Rent Increase Incorrect.
Hello, I just got a message in my UC Journal saying Council have confirmed my rent increase. The new rent amount for this year is £94.96 but UC have it as £94.06. Only 90p I know so man on UC helpline said do a change of circumstance in my journal. Was this correct as it won't be councils mistake it looks like a typing…
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Childcare Element and 17 year old working
Hello there I have a 17 year old son who is a FT student in non advanced education. He currently works approx. 18 hours per week. During the summer holidays he is keen to work more and this will be more than 24 hours per week. Will my UC and Child Benefit be affected? TIA
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Tardive Dyskinesia from anti-psychotics.
I have been treated for severe depression for many years. Over the last year or so, I have been cutting down on my meds. One of those was a low dose anti-psychotic. Since stopping it, I have developed tardive dyskinesia, involuntary rolling of the tongue and lip smacking. I was wondering if anyone else has had this…
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The Reality - Food For Thought For Voters
https://www.theguardian.com/commentisfree/2026/apr/27/plane-passengers-uk-deportation-policy-gatwick-forced-removals
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Cerebral Palsy and the maternity journey. Voices from women in the UK
Choices and Support on the Maternity Journey in the UK: Voices from Women with Cerebral Palsy The number of disabled women, including those with cerebral palsy (CP), experiencing pregnancy and motherhood globally is increasing. This could be attributed to equality legislation, medical advancements (including assistive…
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Hi, my name is bex123! Feeling low.
hello I feel so horrid. I’ve been on benefits for years due to my mental health. I know I deserve help but everyone around me shoves me into the dirt. My “best friend” yesterday said “but you’re reliant upon the state, aren’t you?!”. It was the way he said it. Up on his pedestal. He reminded me of all the incredibly…
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Dating...
8 year... I am ready.... dating
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Hi, my name is Amh24585!
I've had my decision And with the accessor made a while back And with the accessor made a while back this On this has still not being sorted out can someone please help me as I have heart condition where I had a heart attack and I also have unpredictable epilepsy And I faint more than other than ever than I have before…
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Virtual Bingo - Wednesday 29th at 2:00pm - Please express interest by voting
Morning everyone. I'd like to arrange a Virtual Bingo game for next Wednesday 29rd at 2pm. How this will work is that I will send you a link to your virtual bingo card link. To access this, you just need to click on the link and then begin marking. The marking works by using your mouse by clicking on them, which will put…
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Hi, my name is Mother_of_Cats! Invisible disability
Hello everyone, i am someone who is struggling with autoimmune illness (sytemic sclerosis), also diagnosed with fibromyalgia. There are days i almost feel normal again, then i tend to overdo, and there are most days when i struggle with pain, stiffness in my joints, brain fog and exhaustion. When i was diagnosed doctors…
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Functional intimacy
Hi Everyone! I’m an Occupational Therapist passionate about supporting disabled people with functional intimacy. Intimacy is an essential activity of daily living, but the practical barriers aren't talked about enough. My goal is to change that by sharing advice on adaptive aids and accessible strategies so that everyone…
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Inefficient carers
Hello all, I’ve been having visits from carers from adult social care providers for a month now. There are several different ladies who visit. One visit is for some sort of domestic services and twice my bathroom has been cleaned, however I closed the bathroom door after turning off the radiator in there and was horrified…
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New Rates
Hi our daughter is on uc with LCWRA. Her statement is still showing same rate as the previous month. When do the new April 2026 rates get paid to claimants as she only changed over in August last year so this is new to us.
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First time PIP claim, not sure how it works, form has gone to assessment team
I filled my pip form online completed on a Friday …message on Monday to say my online form has gone to the assessment team.. not sure how it works first time I have filled one in.
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Hi, my name is KVB!
Hi!
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A bit of advice I’m needing please.
What the what the problem is that I’ve self excluded myself from all gambling websites a couple of years ago. But since then I have been receiving text messages a couple of times a day everyday to click the link to casino’s and online slots. It’s even on my emails too. It’s really effecting my mental health issues which I…
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PIP Review
Had a PIP review last week and I have printed off my statement of entitlement letter, They have given me the standard rate of living component but have increased the mobility component to enhanced. both awards are from and including the 14th November 2025. Does this mean they are going to backdate the award from November…
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Hi, my name is Jimbones13! my child is stuggling at school.
Hi, i am guardian to my 6 year old granddaughter, she is currently on the waiting list to be diagnosed for adhd. She has only just been accepted on the list for diagnosis and could take a year/18 months to happen. The reason i am here is to try and get some advice or help regarding my childs school. She struggles with…
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Hi, my name is Cooper73!
hello and thanks for letting me join. our current situation is we private rent a 2 bed semi detached house with beds and bathroom upstairs in scotland. i suffer arthritis and badly worn discs in my back which cause me a lot of pain and restlessness. i also have adhd, copd and anxiety. i also have severe tinnitus and cannot…
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9 years together he wants to split
Hi, I'm 53 my partner is 35. We've been together 9 years. We spoke about the age gap and the possibility of having children when we knew we were heading into a serious relationship. 2 years ago bought a house together. We were previously living mortgage free in my late husband's home. I have cerebral palsy spastic…
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Lived Experts Research Community - Three Hands Insight
There is opportunity to join a paid Lived Experts Research Community, where individuals can share their feedback and experiences with companies to make their services and products more inclusive and accessible. For more information, please visit Three Hands Insight.
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Hi, my name is dawncarr!
Hi have filled in a coc form. I received a txt to say it had been received, then a txt to say it was with maximus assessors that was on the 2nd April, but nothing since should I be worried?
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Does this mean I won't have to have a PIP assessment?
I have just submitted my Pip forms, I have been on pip since it began and dla before that. Anyway the last time I reapplied I didn’t have to have an assessment they just gave me my Pip. Does this mean I won’t have to have one again? I have spinal issues plus other conditions. All of which I’ve sent evidence of . Thanks for…
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Looking for support groups after Dad's death
Hello, a few weeks ago I posted about how I was in despair after my Dad died. He was in hospital for five weeks, and we were never properly told what was wrong or how he should be treated, and because of miscommunication we were robbed of the chance to get him into a hospice, to make him comfortable and to have some time…
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Upcoming Events
- Nourishing families with cerebral palsy
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Northern Hybrid Cerebral Palsy Meetup
A meetup for adults with cerebral palsy who live in Northern England. Hybrid meetup for adults with cerebral palsy in Leeds. Join in person or online. Teams joining link sent after booking. This is a relaxed, friendly meetup for adults with cerebral palsy living in or around Leeds. This is a collaborative event with…