Scope’s Online Community
Discussion List
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Relationship with 4 people ( 2 carers) and us
Hi feeling really **** off today! Myself and my partner both have 24hr care packages so more often than not there is 4 adults in our home! So can difficult for privacy etc. Sometimes we text each other instead if we are flirting etc. Yesterday I was told by one of my carers, that there has been comments make about this, as…
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re lcwra and studying for a masters part time
hi does anyone know if i study online at my own pace is this allowed with lcwra im just wondering, dont know if i can definitely do it but feel i need to do something i will be applying for dsa too and it will only be the tuituin fees i would be applyinf for a student loan for not maintenance
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Hi, my name is LittleOwl2!
Hello,I have just joined your lovely community. I am very late diagnosed Autistic and have Hypermobility Spectrum Disorder amongst other things. I have been through several benefit changes over the years from Incapacity Benefit to Income Related ESA to Contribution Based ESA due to bereavement and now New Style ESA. Also…
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Before Satnavs in cars we had .......
Can you imagine trying to get from A to B - Using a cassette ?
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Day trips and Outings
I'm sure we all like Day trips and outings etc. What sort of places do you like to visit and what things do you like to see and do. For me Bus travel is part of every day life well not every day lol. I buy a West Yorkshire Day Saver for £6 and take to the buses around West Yorkshire. In fact my trip today is to the Lovely…
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What to expect in a LCWRA meeting - on Weds
Hello all, I think I have posted about this a couple of times and I suppose I am still not all there with how UC works, never mind this LCWRA assessment! It is coming on Wednesday and having sort of understand about what may happen would be helpful. Firstly, I have Autism. What questions will they ask? How long will the…
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The confusing new question on new pip review form
Hi we are trying to fill in my new pip review form and cannot get my head around the question Tell us why and when these needs began. someone on you tube channel said to just put the condition that stops you from doing the task and the year it was diagnosed is this ok to do that? because it's causing so much grief. Any…
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Do You Like Horror Films?👀💥
I am going to see Evil Dead Burn on the weekend and it got me thinking how divisive horror and scary films can be. I know some people absolutely love them and others just straight up refuse to watch them! What's your favourite scary movie?(😉😉😉)
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ESA Payment Late
I’ve been claiming Income-Related ESA since 2017, and I’m in the support group. My fortnightly payment has until now always gone in at 00:01 on Wednesday at the latest, often as early as 23:59 on Tuesday, but I haven’t received it today. The only thing that’s changed is that I’ve just been awarded Adult Disability Payment…
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LCWRA phone assessment
Hi everybody I've just had a telephone assessment for LCWRA. I was expecting to maybe be on the phone for an hour. I was wrong. THREE hours 20 minutes! I'm exhausted and totally drained. I'm just hoping, after this, for a favourable outcome. I really feel as though I've been wrung dry 😫 Is this a record for the longest…
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Hi, my name is TomCornes1234!
Hi im a freind of thomas [removed by moderator] im on here on behalf of him hes dyslexic, autistic and also suffers from anxiety he has been treated unfairly and discriminated and taken advantage off and he cant do nothing because of his disabilities ive come on here in the hope of finding some nice people who can help him…
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My $hit Show of a life right now.
Well where shal I start. This time.last month I had a roof over my head. A comfy bed,a decent job.(Generally a normal.'Struggling to get by!." Uk Male adult. So now im homeless,jobless,starving hungry with no fuel.in my van(which is my current make shift home!!. Waiting for the UC helpline to call me back with a little…
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Mr Grievance Strikes Again.
https://www.theguardian.com/politics/live/2026/jul/07/nigel-farage-reform-uk-donations-investigations-parliament-electoral-commission-defence-nato-keir-starmer-latest-news-updates
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PIP review - what to put in further information
I'm completing my PIP review form. What should go under the final section ' is there anything else you think we should know'? Do we need to outline out whole disability story here, as if we were all applying for the first time? It feels odd to leave it blank bit also tedious to go through everything when the review has…
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Repeat prescription refused due to medication review overdue
I got a message from my GP’s surgery earlier today to say they couldn’t process my repeat prescription as my medication review was overdue. I got really upset as it’s not a good idea to just stop taking my meds. They wanted me to have a phone consultation with a pharmacist who I’ve never met and I have problems engaging…
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Hi, my name is Pablo1073!
Hi everyone, my ESA hasn't arrived today & lve been claiming since 2014, lm going to ring the DWP coz l can't live on nothing
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caring for a teenager
hi every one i am a carer for my daughter aged 13 who has asd anxiety and ebsa and sometimes its very draining and i find it makes my fibro and osteoathritis, and other conditions reaally flare up, wondering if anyone else on here is in the same positiion and any tips for support thanyou
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Sex when both are wheelchair bound
Hi I've spoke about this before but it's really becoming an issue. Spoke to his care agency apparently they view as abuse! Eventhough everything i read says they should help. My p.a's are related to me or close friends. Is there anywhere I turn for help and advise
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Hi, my name is Samantha
I have psoriatic arthritis and am currently taking methotrexate, but it does not seem to be effective and leaves me completely exhausted. Eighteen months ago, I was hill walking and trampolining; now, I feel like an elderly woman. My mother, who is 79, is in better health than I am. At the moment, I am feeling very sorry…
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Advice on dating or making friends as a disabled person in the UK?
Hi everyone, I'm new here and based in London. I have [your disability if you want to share, e.g., cerebral palsy / mobility issues / etc.], and I've found it really hard to meet people for friendship or dating. Mainstream apps feel tricky because of judgments or accessibility stuff. Has anyone had success with online…
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Autism in young girls question
Hi there, I am gathering some research for a children's picture book following a little girl who is on the Autism spectrum who loses her favourite wellies that she wears all day, every day. When she discovers they are missing, it is put to her that she may have to wear some different shoes, which creates a very stressful…
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Advice about Child element UC College
My son in Sept 2025 started Btec Level 2 Business Studies and repeated Science GCSE in college. His last exam is 15th June 2026. The same college has given him conditional offer to study A levels in Sept 2026. Today i received a message in journal telling me that his element will end in june as the Btec was 1 year course…
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Journal messages from UC!!
Has anyone else started receiving these messages from Job Centre that are on LCWRA. Would you like to have a chat about how I can help you? We can talk about how I can support you. And we can identify things you can do to help you take the next steps – but only when you’re ready to. For example, we can talk about: -…
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Had my pip assessment , requested the PA4 , no points awarded
I will keep my issues very brief , im still awaiting an autism assessment along with adhd and ocd after 5 years. Around 6 months ago i found out about right to choose and they said my assessment should be done within 9 months ( im now 6 months into the 9 ). I had to take 2 AQ50 tests 1 for nhs and 1 for right to choose -…
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Holiday abroad with appointee lcwra
Hello everyone Im the appointee for my daughter She's on pip UC Lcwra .She's got mild autism and schizophrenia she is on medication and stable. We have got the opportunity of going to visit my mother her nana in Spain she moved over there a year ago . We would be only going for 6 days she cannot travel alone as didn't do…
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Had my WCA awaiting decision
I have been receiving LCW for the past few years. Last year, my health worsened, so I notified Universal Credit. They sent me a form to complete in February 2025. After waiting a year, I finally had my WCA via a telephone appointment March 2, 2026. I would like to know the typical waiting time to hear back from the…
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A Warm Welcome To New Members!
Welcome to the community our newest members who joined us yesterday and today so far! @michael002 @Chich@jeremyundrae1982@mhutt @denroseneal66@Briarrose@michael002 @shelleyk @megsens @Casper26 @Mmichaela123 @david70c70 @MrsG75 @kursi1a @Gweneth @viktoria84 @Fahmidadeany @cool_player1 @Nat89 @Vicky0212 @LaurieB @JayaDheer…
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Setting up a bank account as a nominee
I am nominee for my daughter, who lacks capacity, so I have set up a separate bank account in my own name to deal with her benefits. Can anyone please advise me as to whether this is an acceptable method. Thank you
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Stuck with adapted bungalow
My father was put onto 24hr oxygen in 2022. It took us until May 2025 to be offered an adapted bungalow. He died unexpectedly in September 2025 and now I'm stuck with this lovely bungalow which I don't need! I've tried mutual exchange, choice-based lettings, joined several council lists, Facebook groups, and I'm still…
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What do you love most about your home? 🏘️💚
For me, it's the decking area and garden because I find it very therapeutic. We have a little solar powered fountain and the sound is so relaxing. It's heaven 😊 What do you love most about your home?
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Upcoming Events
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Northern Hybrid Cerebral Palsy Meetup
A meetup for adults with cerebral palsy who live in Northern England. Hybrid meetup for adults with cerebral palsy in Leeds. Join in person or online. Teams joining link sent after booking. This is a relaxed, friendly meetup for adults with cerebral palsy living in or around Leeds. This is a collaborative event with…