Scope’s Online Community
Discussion List
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Lost pip after change of circumstances
Hello I'm just looking for some advice really so I had a pip award I won at tribunal in August 2025 standard for both for mental health (BPD, PTSD, anxiaty and depression also waiting for assesment for possible aitisum) . In the 2 years waiting for tribunal my mental health was declining but I couldent give new evidence to…
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Timms review interim report: still no clue with 25 working days left
From the Benefits and Work site https://www.benefitsandwork.co.uk/news/timms-review-interim-report-still-no-clue-with-25-working-days-left
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Hi, my name is poddy12!
hi im john 54 parlised down right side love arsenal
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Copied From Motability Forum
The government have introduced a service which, amongst other things, allows you to check the rate and length of your benefits award and download proof of entitlement. It is particularly useful at the moment for claimants who want to check their personal independence payment (PIP) award to see if they have been given an…
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Can a current PIP claim be asked to attend a face to face assessment
My last assessment was by phone but they didn't tell me how my next one would be carried out. I have a problem travelling as I have Epilepsy, Schizophrenia and Fibro Myalgia so attending a face to face appointment would be absolutely impossible for me. Does anyone know what the criteria for carrying out a face to face…
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How to boost your self-esteem when you're disabled
Hello everyone!Please help me, someone, share your experience. I have a slight disability and don't understand how to raise my self-esteem in this case and not be afraid to meet people.Although I am outwardly pleased and pretty, this disease kills all confidence in me. :( I will be very grateful if someone answers me!
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Rent
Hi, I'm 21 and looking to start renting soon, does anyone know what type of financial support I would be entitled to?
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Homeless no help from local council
Hello there this is a hard thing to write I just been made homeless from a marriage break up and I don't have anyone that I can go to my family all stop talking to me 14 years ago and I have no friends see we move to a area thaty at the time my wife wanted to and she put the full name of the family home.in her name and at…
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Brilliant Paramedics Terrible A+E And Medical Ward
Recently i experienced a fall at home and despite my best efforts i was unable to get off of the floor so eventually i pressed the alarm thingy around my neck. Within an hour the Warden and Paramedics arrived but were unable to gain entry to my flat because unbeknown to me there was no key in my keysafe box. Shortly…
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Hi, my name is Dhaladog!
Hope you are all well here, I am a 58 yr old man who has a few health problems and subsequently a few benefit problems. I have just got a new puppy and although I'm getting to love her she's driving me crazy with her antics, hand biting, constant wailing if I leave the room for more than 5 min and incessant going to the…
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The Assembly
I am in the middle of watching Stephen Fry being interviewed by a neurodivergent panel on ITV. I am finding it incredibly informative, I thoroughly recommend it.
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The power of listening to lived experience
The Cerebral Palsy Network was invited to a World Café event at the University of Sheffield. The project looked at how to improve access to cervical screening for disabled people. It focused on the barriers that disabled women and other disabled people face. I was proud to represent the Network. I listened to people with…
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In person UC appointment after multiple requests to stay online
Hi, so I consider myself disabled as both my arm bones were broken in two and after the reconstruction surgery I have lived with chronic pain ever since. The job center is aware of this and I have made it explicitely known that I cannot do in person appointments because of this. It seems every few months they try to switch…
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First time flying - severe cp' -oxygen hire- transfers
Looking for advice specifically around oxygen hire, transfers and managing flying for the first time with a complex child please 🙏 Our son is 2 and half , gmfc level 5, immobile, non verbal, with epilepsy, Tof/oa, dystonia, severe gastroesophageal reflux, visually impaired, chronic lung disease, gastro jejunally fed and…
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Rejected twice
Hello, My first application for ADP was rejected and I got some help from a welfare rights officer for a mandatory consideration - still got rejected. They didn't contact my GP for any evidence and when I said I would send it in, they said the decision maker has already made their decision so there was no point. Is there…
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Universal Credit Bank Reviews: Frequently Asked Questions
We've seen lots of posts about Universal Credit reviews lately, so we hope this post will help answer some common questions. What is a Universal Credit review? A Universal Credit review is usually to check that you are receiving the correct amount in your payments. These reviews look mostly at your bank accounts and are…
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Facebook and Social Media.
How many of us Dabble in Facebook. I can't imagine life without it now lol. Have made lots of friends over the years and played a few games on there my best one is Hedgies. I've been playing that one for years now ever since it was released. I often wonder how we'd go on now without Social Media. Years ago we grew up…
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Looks like a tower block in New York is about to collapse
It looks like it'll be another Champlain Towers but hopefully with no one in there as I'm sure it's been evacuated.
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CHANGE OF CIRCUMSTANCES
Sorry if this just sounds like I’m repeating myself. Last time I posted (back in March I think) I talked about going to appeal as opposed to a change of circumstances. However, again, I ended up back in hospital and have, again, been quite unwell for the last few months. Although there is some improvement, I still have…
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Timeline from having WCA to receiving a decision
Hi. I'm just wondering how long people have waited for LCWRA decision after having WCA.
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PIP - how long will it take to get a decision or oral hearing?
My PIP Appeals for Daily living yo the First tier Tribunal is going now to a year on 17/07/2026, can anybody tell me how long my appeal will take before I get a change of decision or oral hearing. I am fed up and exhausted with the system
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Is it gross misconduct? I have a disciplinary and im disabled. Help me please.
So. I work at UPS and have done so for 11 years. Ive had a hard time. Its my first ever job. I have a brain injury and adhd and autism. Ive had a few disciplinarys over that time but right now, my " final writing warning has expired. The story... I was working 2 days ago on a trailer scanning. A staff member [ a freind]…
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Social Security Scotland - ADP (Scheduled) Review
Hello everyone I am due to have a (scheduled) Review of my Adult Disability Payment (ADP) this month (after 2 years). I am trying to work out whether I should tick "no changes" or fill in a Change of Circumstances (CoC) form. I am seeing really conflicting advice on this. Some say the safest thing is to click "no change"…
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Hi, my name is goozer!
Hello My name is Brendan - I'm diabetic and have had 4 strokes
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Burnham set to ditch Palantir from NHS
https://uk.yahoo.com/news/burnham-set-ditch-palantir-nhs-143017893.html
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School Assembly
Hello all, I am a primary school SENCO who has the absolute privilege of supporting a pupil with cerebral palsy. After a conversation with parents, we are all in agreement that as a school, would love to celebrate World Cerebral Palsy Day. As part of this, we are looking at running an assembly but were wondering if anyone…
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PIP Renewal
Hello, My 3 year PIP award runs out in February 2027. I will be reapplying again for the award. I’m yet to receive a letter about renewing my award. Is this typical? I’d read somewhere that people can receive a letter 6-12 months out. I recognise there’s a huge backlog of PIP applications at the moment. What does this…
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Lcwra holiday time
I know you can have 1 month aborad, and i keep seeing people say that the leaving and coming back days dont count but i cant find anywhere on an official site that says that. all i can find is the 1 month. Id like to know as then i can have an extra 2 days away each time
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I was awarded PIP!!
Received a text message this morning saying I’ve been awarded PIP. Yesterday (1st of June) I was able to access my PIP letter from around mid day. I have been awarded enhanced for both daily living and mobility and I feel so happy as I had expected to not get anything even based on how my phone appointment went. I claimed…
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Adult child on UC
Hi I'm getting conflicting answers . My adult child over 21 pays me 400 for food and their bills each month . They are on my claim and I am deducted from my claim for a non dependent. But is the money she gives me counted as income ?
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Upcoming Events
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Northern Hybrid Cerebral Palsy Meetup
A meetup for adults with cerebral palsy who live in Northern England. Hybrid meetup for adults with cerebral palsy in Leeds. Join in person or online. Teams joining link sent after booking. This is a relaxed, friendly meetup for adults with cerebral palsy living in or around Leeds. This is a collaborative event with…