Scope’s Online Community
Discussion List
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Research participants request
Hi, I’m Jess. I’m a nurse and a Master’s student at King’s College London. I am looking for adults with cerebral palsy to share their experiences of pain in hospital. Who can take part: Adults aged 18 and over with cerebral palsy People who have stayed on a hospital ward in the last 10 years You only need to share what you…
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Pip assessment tomorrow, what to wear and how to dress?
I've got my appointment tomorrow and I'm wondering what I should wear to it since I've heard they assess you on how you look and if you look healthy? Should I just dress normally or dress up? Also any things I should avoid or should do in the appointment? Is it OK to refuse to answer or do something? For example I have…
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Esa to uc during my pip appeal.
My pip stopped in January 25. In March 2025 my esa migrated to uc. My pip appeal was backdated and 3 more years. Due to my pip being stopped my severe disablement did too. My pip has been backdated but what or who do I contact regarding it as uc say they don't owe me anything? Pip have paid…possible esa?? ?
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'Light Touch' PIP Review for those who have a 10 year award
Just noticed what the Light Touch review form will be. It is going to be a 6 page review form similar to the full 16 page normal claim form using the same descriptors. To be honest in saying that it is just a light touch is a joke. With the sound of it it is going to look and feel like the PIP2 but in a more condensed way.…
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My life my choice
So I am a male who 50. I live alone and I am a crossdresser. It what makes me happy. I not a convincing one. Yes I go out to local bar dress up sometimes as I don't drink much. I was sacked from work for being a cd. I work in a bar as well. Not one I drink in now. I am who I am and I am happy being a crossdresser. My so…
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The world against me
I feel everything is against me. I have no luck at all apart from bad. I try to get money for food. Not had any real food for 2 days and got wait 3 more for decent food. Just want a bit good luck. I will post a new post later tell you why I know friends. It my life .
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Hi, my name is Yorkshire123!
HHello , I had a pip assessment February of this yr, honestly I did question whether they were writing about someone else as majority of it was untrue, misinterpreted or information was basically left out, I wrote a 3 page email to maximus to complain listing errors, they basically told me calls are NOT recorded, I…
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Pip
Hi I'm get pip just wondering if there is any help with paying my council tax or is there a reduction that I'm intiled to
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Do you watch medical TV shows as a disabled person? 🩺
I was having this conversation with a friend the other day and would be interested to hear what you think! If you're a person who has had a fair bit of interaction with the medical world, do you watch medical TV shows? Or do you stay away because it's too close to home? If you do watch, what do you like about them? Which…
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ESA & Self Employment
Just received a letter from ESA to state they need a full breakdown of my yearly including income expenses hourly rate and per day and week. I am self employed and have previously sent them my tax return as requested to make sure I am earning under the threshold for NS ESA.
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Hi, my name is daz69!
does any one know how to access 3rd gear on unquie 500
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Over £5,000 disregard rule?
Hello, bit of a complicated one - I was awarded over £8,000 in 2023, after realising I was entitled to the carers element on my claim. I had notified on the UC journal in 2018 of my carers status but they hasn’t applied the element and I wasn’t aware of its existence until 2023. After so many messages and phonecalls I…
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Hi, my name is DJBowery!
Also, the thread that I sent this morning needs to be read by a professional.
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New parent disabled child - advice pls
I’m a mum to a one year old girl Elsie She has an ultra rare neuro condition and spent first 8 months of her life in hospital. We came home 3 months ago, via a hospice as we didn’t think she’d make it, and she’s thriving. She’ll have challenges but she is also developing and we are more hopeful. We came home with a care…
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Looking for a builders merchants in NW London who accept VAT exemption
Hi guys, I wonder if anyone can nominate a builders merchants who accept the HRMC VAT EXEMPTION for disability. We are in the nw London area. thanks.
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Insurance claim
Hello, Universal credit have given me two days to get details and help with bank statements about my insurance claim for vehicle theft so the money isnt capital its for a new vehicle and now they will suspend payments. I had already done a financial assessment months before and determined 0 savings. I told them all the…
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Reward ends Dec 2026
My award ends Dec 2026 but I have yet to receive my review form (also had no texts mentioning anything from them) is there delays in sending the form out as usually had it 8 months before?
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Pip reivew
Hi all my pip award ends dec 2026 I still havent received a fourm i also heard they r extending them.from April 2026 also im so ainexty about my pip thing as I got shorted reward as my.last one was 5 years :( this one was 2 years any advice also post in my area hasnt been great but would I received a text saying they will…
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Loud Restaurants Are Driving Diners Away.
https://www.msn.com/en-gb/money/other/revealed-loud-restaurants-are-driving-diners-away-as-brits-refuse-to-sit-next-to-noisy-punters/ar-AA23qhya I do not like noisy restaurants where you are unable to have a conversation around your table.
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National Epilepsy Week 2026.
Celebrating National Epilepsy Week 2026. Shout out to all those living with epilepsy and the support network around them.
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Unexpected points recommended in PA3
Got my PA3 back assessor has recommended points on an activity that I had said in my pip form doesn’t affect me on will the dwp stick to this ? Has anyone else had points recommended in an area they hadn’t previously wrote down as having difficulty in but assessor has acknowledged although can do said activity cannot do it…
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Hi, my name is silverhedgehog83!
I have been diagnosed with childhood hyperkinect syndrome since 1988, in 2025 had a rediagnosis of severe combined ADHD caars-2 t-scores all above 83. Starting my pip journey Dos any happen to have any pa3 or pa4 that are willing to share what the assesors write in them not any personal information or names or anything. to…
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🏉🤩Grand Slam Decider - Womens Six Nations 2026🏉🤩
It's the Red Roses against France this Sunday and I am backing the Red Roses all the way! My friend and I went to our first ever professional rugby match last month. It was the Red Roses vs Wales. We both really enjoyed it even though it was an absolutely scorching day and we were sat directly in the sun🕶️☀️ I didn't…
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RIP Scott Hastings
I am saddened to hear of the untimely passing of Scotland's most capped rugby union player, aged only 61. https://www.theguardian.com/sport/2026/may/17/scott-hastings-scotland-rugby-union-great-dies-aged-61
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Hi, my name is alanvic! Failed to declare property for pension credit
I have been recieving gaurenteed pension credit but I failed to declare 50% ownership of spanish property, what is the likely outcome
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Hi, my name is Blueberry!
Hi
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Hi, my name is Rejjikay!
GGranst
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I became my sister's carer at six - she amazes me every day
From BBC News Shannen Headley West Midlands Trigger warning - mention of sexual assault. One of Sarah Lilly's earliest memories is pushing her younger sister Vicky's wheelchair aged four. She became her second carer two years later. Vicky was diagnosed with both quadriplegic and athetoid cerebral palsy at birth, and Sarah,…
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Hey
hey
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Hi, my name is delbwoy2003!
Hello
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Upcoming Events
- Nourishing families with cerebral palsy
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Northern Hybrid Cerebral Palsy Meetup
A meetup for adults with cerebral palsy who live in Northern England. Hybrid meetup for adults with cerebral palsy in Leeds. Join in person or online. Teams joining link sent after booking. This is a relaxed, friendly meetup for adults with cerebral palsy living in or around Leeds. This is a collaborative event with…