Scope’s Online Community
Discussion List
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The Reality - Food For Thought For Voters
https://www.theguardian.com/commentisfree/2026/apr/27/plane-passengers-uk-deportation-policy-gatwick-forced-removals
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Cerebral Palsy and the maternity journey. Voices from women in the UK
Choices and Support on the Maternity Journey in the UK: Voices from Women with Cerebral Palsy The number of disabled women, including those with cerebral palsy (CP), experiencing pregnancy and motherhood globally is increasing. This could be attributed to equality legislation, medical advancements (including assistive…
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Hi, my name is bex123! Feeling low.
hello I feel so horrid. I’ve been on benefits for years due to my mental health. I know I deserve help but everyone around me shoves me into the dirt. My “best friend” yesterday said “but you’re reliant upon the state, aren’t you?!”. It was the way he said it. Up on his pedestal. He reminded me of all the incredibly…
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Dating...
8 year... I am ready.... dating
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Hi, my name is Amh24585!
I've had my decision And with the accessor made a while back And with the accessor made a while back this On this has still not being sorted out can someone please help me as I have heart condition where I had a heart attack and I also have unpredictable epilepsy And I faint more than other than ever than I have before…
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Virtual Bingo - Wednesday 29th at 2:00pm - Please express interest by voting
Morning everyone. I'd like to arrange a Virtual Bingo game for next Wednesday 29rd at 2pm. How this will work is that I will send you a link to your virtual bingo card link. To access this, you just need to click on the link and then begin marking. The marking works by using your mouse by clicking on them, which will put…
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Hi, my name is Mother_of_Cats! Invisible disability
Hello everyone, i am someone who is struggling with autoimmune illness (sytemic sclerosis), also diagnosed with fibromyalgia. There are days i almost feel normal again, then i tend to overdo, and there are most days when i struggle with pain, stiffness in my joints, brain fog and exhaustion. When i was diagnosed doctors…
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Functional intimacy
Hi Everyone! I’m an Occupational Therapist passionate about supporting disabled people with functional intimacy. Intimacy is an essential activity of daily living, but the practical barriers aren't talked about enough. My goal is to change that by sharing advice on adaptive aids and accessible strategies so that everyone…
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Inefficient carers
Hello all, I’ve been having visits from carers from adult social care providers for a month now. There are several different ladies who visit. One visit is for some sort of domestic services and twice my bathroom has been cleaned, however I closed the bathroom door after turning off the radiator in there and was horrified…
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New Rates
Hi our daughter is on uc with LCWRA. Her statement is still showing same rate as the previous month. When do the new April 2026 rates get paid to claimants as she only changed over in August last year so this is new to us.
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First time PIP claim, not sure how it works, form has gone to assessment team
I filled my pip form online completed on a Friday …message on Monday to say my online form has gone to the assessment team.. not sure how it works first time I have filled one in.
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Hi, my name is KVB!
Hi!
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A bit of advice I’m needing please.
What the what the problem is that I’ve self excluded myself from all gambling websites a couple of years ago. But since then I have been receiving text messages a couple of times a day everyday to click the link to casino’s and online slots. It’s even on my emails too. It’s really effecting my mental health issues which I…
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PIP Review
Had a PIP review last week and I have printed off my statement of entitlement letter, They have given me the standard rate of living component but have increased the mobility component to enhanced. both awards are from and including the 14th November 2025. Does this mean they are going to backdate the award from November…
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Hi, my name is Jimbones13! my child is stuggling at school.
Hi, i am guardian to my 6 year old granddaughter, she is currently on the waiting list to be diagnosed for adhd. She has only just been accepted on the list for diagnosis and could take a year/18 months to happen. The reason i am here is to try and get some advice or help regarding my childs school. She struggles with…
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Hi, my name is Cooper73!
hello and thanks for letting me join. our current situation is we private rent a 2 bed semi detached house with beds and bathroom upstairs in scotland. i suffer arthritis and badly worn discs in my back which cause me a lot of pain and restlessness. i also have adhd, copd and anxiety. i also have severe tinnitus and cannot…
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9 years together he wants to split
Hi, I'm 53 my partner is 35. We've been together 9 years. We spoke about the age gap and the possibility of having children when we knew we were heading into a serious relationship. 2 years ago bought a house together. We were previously living mortgage free in my late husband's home. I have cerebral palsy spastic…
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Lived Experts Research Community - Three Hands Insight
There is opportunity to join a paid Lived Experts Research Community, where individuals can share their feedback and experiences with companies to make their services and products more inclusive and accessible. For more information, please visit Three Hands Insight.
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Hi, my name is dawncarr!
Hi have filled in a coc form. I received a txt to say it had been received, then a txt to say it was with maximus assessors that was on the 2nd April, but nothing since should I be worried?
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Does this mean I won't have to have a PIP assessment?
I have just submitted my Pip forms, I have been on pip since it began and dla before that. Anyway the last time I reapplied I didn’t have to have an assessment they just gave me my Pip. Does this mean I won’t have to have one again? I have spinal issues plus other conditions. All of which I’ve sent evidence of . Thanks for…
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Looking for support groups after Dad's death
Hello, a few weeks ago I posted about how I was in despair after my Dad died. He was in hospital for five weeks, and we were never properly told what was wrong or how he should be treated, and because of miscommunication we were robbed of the chance to get him into a hospice, to make him comfortable and to have some time…
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Care service in Gloucester?
Hi, I've just joined. My brother is 39 and has cerebral palsy. Can anyone recommend a good care service in Gloucester? He's moving up here soon. We'd be grateful for any advice! Thanks!
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Moving flats on benefits
Hi everyone, I’m currently in the process of potentially securing a new place to live (nothing fully confirmed yet, but things are moving forward), and I wanted to get a bit ahead in understanding what I might need to do from a benefits/admin perspective. I’m currently on Universal Credit (LCWRA) and PIP, and I receive…
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VOTE MAY 7th PROXY VOTE IF YOU CAN’T GO IN PERSON
CAN’T GET TO THE POLLING STATION TO VOTE? Be quick though. Apply for a proxy vote You can get someone else to vote on your behalf if you can’t go to the polling station in person. You’ll need to apply by 5pm on 28 April 2026 to vote by proxy in the 7 May 2026 elections. https://www.gov.uk/apply-proxy-vote Vote for who you…
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Struggling To Cope With My Husband’s Disabilities
Hello! My husband has been disabled for just over a year now. It started when he had multiple chest infections within 4 months which lead to Pneumonia. He never fully recovered, and after seeing a Neurologist last week, they have now diagnosed him with MS. We have a 2 1/2 year old daughter and this all came about last…
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PIP assessment report
hi I got my pip assessment report 10 points for daily living however they’ve recommended a review in 1 year which I get as I had open heart surgery last year and hopefully will get back to full health but not looking likely has nerves are knackered anyway if awarded would I get a review straight away?
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Struggling so much with the new PIP review form, I don't know how to fill
I have left off the PIP review form for a couple months now and now they have cancelled my payments, I have been extremely overwhelmed, I already get the enhanced daily and standard mobility (it should have been enhanced because of my sickness) I have severe OCD: Activity 1 - Preparing food and cooking 25: Do you need to…
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Hi, my name is Allyballybee!
Hello, I’ve seen you have banned the Singing Striders from supporting those running the London Marathon for Scope this weekend. This is because their founder, Janet Murray, does not believe men can become women. I’ve supported Scope for many years. You are also beneficiaries in the will I’ve recently made. I’m now going to…
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An introduction to my LEGO collection 🧱✨
This is my LEGO collection 🧱✨ Each set in my collection is special, and every build required time, patience, and creativity to complete. Here’s a closer look at each one: 1️⃣ 🦖 T-Rex This powerful dinosaur build really stands out! It took me around 1–2 hours to complete and has roughly 200–300 pieces. I enjoyed assembling…
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US Medical TV shows
Evening everyone… I struggle with not sleeping due to pain, bladder issues and spasms thanks to MS…so often get up in the night to waste a couple of hours and have a warm drink. Have recently binge watched the entire series of ER (loved it!) - better late than never, and am now watching The Pitt, another US ER series. Has…
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Upcoming Events
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Scope and CP Sport Inclusive Sports Festival
Everyone should have the opportunity to enjoy sport. 🎾 Scope is partnering with Cerebral Palsy Sport to bring an Inclusive Sports Festival to Lee Valley Hockey and Tennis Centre on 27 October. It’s a chance for disabled people of all ages to try a range of sports, meet new people and enjoy being active in a friendly,…