Scope’s Online Community
Discussion List
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Hantavirus
They have all of the current sufferers and patients who (potentially) have Hantavirus in one place (on the ship) - so why are they releasing them to potentially transmit the virus worldwide ? They should be quarantined ON THE SHIP ! This could all go very wrong……. remember Covid from 6 years ago ? The world appears to have…
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Why moving from ESA to UC causes yearly reductions when rent is paid through UC
Many people who moved from ESA + Housing Benefit to Universal Credit have seen their yearly income fall, even when nothing in their personal circumstances changed. The reason is simple: Under ESA, your rent was protected. Under UC, your rent is taken out of your living money. How it worked under ESA • Housing Benefit paid…
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Council Tax Reduction and disregarded benefit backpayments – advice needed
Hello, I receive Universal Credit, ESA and PIP and have significant disabilities. My local council recently reassessed my Council Tax Reduction because of savings that include accumulated DWP benefit backpayments. I had previously supplied evidence from the DWP explaining these payments and their capital disregards. The…
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Voluntarily ceasing PIP
How do I ask for PIP to cease with immediate effect - I no longer want to receive this
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Medically suspended from job
Hi We are a married couple 1 still working and one passed retirement age but still working. Currently receiving state pension and working 3 days a week due to ill health. I can't continue in my role as it is manual labour and sickness is becoming the norm however I can't afford my bills with my wife's salary included. She…
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The Never Ending Songbook (Volume II)
Last time I was on the forum I started this thread which people seemed to enjoy but when I left for 8 months it was deleted with me so I'll restart it. for those who have joined since April or don't remember, basically I post a song title and artist the next person posts a song title and artist using a word from the…
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WCA Mandatory Reconsideration
Just sent a detailed Mandatory Reconsideration via my UC Journal. Included my MRI findings, that I can only walk about 50m before pain forces me to stop (which should be 15 points), sitting/standing limits (only 15–20 mins before I have to keep shifting position), the substantial risk arguments under Reg 35/39(6), that I…
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Carer allowance and UC
Hi guys. I am just concerned about I started carer allowance and UC deducted from benefit all I received e.g £300 but UC deducted from me £345 for carer allowance from benefit is that normal and also I am working part time and deducted from benefit and left me very low income what should I do ? I have 2 kids and my husband…
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Random thoughts 🤔
I have a lot of random thoughts and thought maybe I can get them out here and I can see what other people think about. My current random thought is has anyone ever done research into how headphone wires get tangled so easily? Have they produced a transparent pocket and filmed it over time during field tests? What random…
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Experience of first autism assessment, felt like a benefit assessment.
So me and my sister were there, and my other sister came in towards the end of the call. From the start he was trying to dismiss it, he opened with he doesnt understand why there has been a referral, tried to say it might be ADHD, but then later tried to pass everything off as basic depression anxiety. He got so aggressive…
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Distinguishing Income from Capital/Savings for Universal Credit
I'm very confused about this. Let's look at the example given by gov.co.uk… "Katie's assessment period for Universal Credit runs from the 8th of the month to the 7th of the next month. Katie was paid a salary of £2000 on 1st April. This was within her 8 March to 7 April assessment period. By the end of her next assessment…
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Remembering lost loved ones
It’s one year since our much-loved Albus_Scope passed away and he’s still very much in our thoughts. He made such an impact here on the community and to the team itself. He was not just a colleague, but a friend and there are so many little things that still make me think of him, such as the pigeons that have taken up…
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This is a poem about Carers.
I wrote this when I visited some one in hospita suffering from Dementia. Hope you like it….. Dementia – poem. I see a woman I once loved, Her eyes still blue, they now see through you, Hello my love how are you today, Is met with that same blank stare, Hello, who’s there. I try to see the girl I knew, that took my heart…
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Help for my 20-year-old son who won't leave the house
Hi I'm after advice on my 20 yr old adopted son who has mental health/ anxiety issues and won't leave the house to get any help! He left school aged 14 as wouldn't go out. He's been under CAMHS until 18 but now won't go out at all! I suspect he is on the autistic spectrum as does have traits but he feeling highly anxious…
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I'm new here
I'm here looking for support,advice and possible help. I'm struggling with many issues and feel extremely let down and invisible. Many organizations let me explain much of my story and why I'm reaching out for help, I always end up in floods of tears then told they can't help. I feel so drained and alone and don't know…
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hello I am Pauline
I lost my husband in may , He Had COPD was was ill for a number of years but really started to go down hill November 2024. He became bed bound in January on was on Oxygen 24/7 we had carers coming in 4 times a day . he was hospitalised a few days before our 45th wedding Anniversary . They discharged him 7 days later . I…
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Broken down scooter in W2
My scooter broke down yesterday, I have tried everything AI suggested. It's an electrical problem but I can't crouch or bend down long enough to disconnect and reconnect the wires. I'm stuck indoors now and I don't know what's to become of me
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Benefits/Bank new law issue
Hi, my Mum claims benefits for her disabilities and I do all her online stuff as she isn't computer/smartphone literate. Today when I logged into her Santander bank account (with her permission) to transfer some money to me for shopping, it asked me to go through a list of questions or else her bank account will become…
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Feeling suicidal? Where to get help
Getting help if you feel suicidal Struggling with your mental health can feel frightening and isolating. But there is help available. The community is here to talk things through if you're going through a rough time, but sometimes you might need some more urgent support. Urgent support if you are in crisis If you are in…
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Mental Health Support Helplines ☎️
Mental Health Support Lines If you're struggling with your mental health, you don't need to face it alone. The community is there for you should you need to talk about anything you're struggling with. But if you need some extra support, we've put together a list of mental health support services that are there to help you…
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Which Supermarket Is Best For Deliveries?
My Sainsbury's delivery pass is about to expire. Is there perhaps a better alternative among the rest of the big four? (Sainsbury's, Tesco, Asda, Morrison's). I say the big four, because there is nothing else available where I live.
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Universal credit
Hi does anyone know why universal credit keeps asking me to confirm my details
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Exoskeleton - Good/Bad ?
Hello every one, I started with a search and found nothing in this site and I think the people here will be the experts. So, my partner has limited mobility for multiple reasons. She can transfer, walk two - three steps unaided and has been like this for eighteen years but before this was fully active. She also can only…
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What are you reading? Book recommendations please! 📚️
Hi everyone 😊 I've just started to get into reading and I'm really enjoying how relaxing it is and how I can immerse myself in a story. So far I've been reading murder mysteries but I'm open to all genres. Let me know your favourite books and what you're currently reading so I can start my library!
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Can I come off benefits completely with parents financial support?
Hi All, I really wish to come off benefits completely, but I'm on lwcra. My parents are willing to financially support me from now on, so I can do this. Is this a straightforward process? From what I'm reading, it can be very difficult, if not impossible. Can anyone give me any advice?
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Frustration getting on the housing ladder as someone with CP
Hello! First post, so apologies in advance if there's some kind of forum etiquette! Was made aware of this forum by speaking with an adviser today. This post is mostly just going to be me venting and asking for advice from anyone who has gone through the same process. I'm a 30, soon-to-be 31 year old who is trying to buy…
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Is it ok to use cameras for security when having carers
This is in my own home, no one lives with me carers visit. The problem is I have noticed some theft. The only sensible thing to do at this point seems to be to use cameras, but I dont know if its legal, and if I have to inform the carer agency. Sadly because they keep sending 5-6 carers every week, I have no idea who the…
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PIP Changes November 2026.
I copied the following from a website: “Personal independence payment (PIP) eligibility will be tightened from November 2026. This will affect new applications but also existing claimants when they are reassessed.” My PIP reassessment is due in May 2027. I have 2 points in five of the Daily Living components and do not…
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Housing
Hello my name is Lynda, i have a 53 yr old son with autismn. He lives indepentenly with my support, he was diagnosed with Copd & asthama several years ago which has since worsened. He now needs a ground floor accomadation with an extra bedroom so that either me or another family can stay over night to give him support. I…
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Reporting capital monthly (giving advice)
Hello, I have always had some confusion regarding reporting capital. If you have over 6k in your bank accounts you will need to report everyday on the last day of your assessment period the amount. I've never really seen a clear explanation for how to do this, so following a recent review I asked if they could make me a…
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Upcoming Events
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Northern Hybrid Cerebral Palsy Meetup
A meetup for adults with cerebral palsy who live in Northern England. Hybrid meetup for adults with cerebral palsy in Leeds. Join in person or online. Teams joining link sent after booking. This is a relaxed, friendly meetup for adults with cerebral palsy living in or around Leeds. This is a collaborative event with…