Scope’s Online Community
Discussion List
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Starting out with claiming pip advice
Hello all, I just wanted a bit of advice from anyone that knows, I started my first PIP claim 7th of July, all forms have been received completed and sent back, I’ve had an email from Capita saying they have received my forms on the 6th August, nothing at all since then, how long is average to get the phone call…
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NHS ILL HEALTH RETIREMENT
Hi, I’m new here and wonder if anyone can offer any advice. I have ME/CFS diagnosed 20 years ago. I have struggled at work but have muddled through with reasonable adjustments etc. However since getting Covid my condition has seriously worsened and I am now applying for IHR. I reduced my hours to 3 days to support me…
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First Dog On The Moon - Algorithm Opt Out On Social Media Platforms
This satirical cartoon is Australian, but i think it's just as valid in the UK. https://www.theguardian.com/commentisfree/picture/2026/sep/09/they-came-for-the-algorithms-and-i-said-nothing-because-my-brain-had-been-destroyed-by-doomscrollamine
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Would we be better off if I gave up ESA?
This discussion was created from comments split from: Someone here advised me I'd be better off switching from ESA to UC.
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Getting a car PIP enhanced
Hello, I’m considering getting a car as I believe it would give me a lot more freedom and conserve energy instead of getting buses etc. I recieve enhanced PIP rate and I’m considering whether to get a car via the mobility scheme or sort things myself through an independent dealer. Money would be quite tight each month if I…
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TP and carers element uc
Hi everyone. I migrated to UC over a year ago from ESA with transitional protection. I would like to engage a carer and have in mind a family member who is unemployed and in receipt of UC. How will this affect both mine and their UC claims? Thanks in advance for any info provided.
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Alphabetical flower game
I'll start withAster
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DWP HELP!
good evening, so this is a long one buckle up! I am a single mother to 3 small ladies and I receive universal credit (I also still work 24 hours a week as a manager in a supermarket and receive £1300 monthly). I have just been asked to upload the 4 months back statements and my tenancy agreement and bills in my name. No…
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Pip review form
Hi I've just received my pip review form I'm on high rate care at the moment and recieved AR2 form nothing has changed an I'm worried about filling the form in incase they take it off me or award me less can anyone advise on do I just say nothing changed on all the forms I'm also in the support group ESA
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Money troubles and lack of support.
Hey, I’m unsure if anyone can offer some advice. I apologise in advance because this is going to be very long! Just to make it clear from the start I have my brother and his partner’s full permission to post this and I have explained to them what I have written before posting. This is primarily based on what they have told…
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World Suicide Prevention Day: 10 September 2025. Cerebral Palsy
September is Suicide Prevention Awareness Month. September focuses on raising awareness about the often-overlooked challenges faced by individuals living with mental health conditions. Suicide is a pervasive issue that does not discriminate, affecting individuals from diverse backgrounds. In 2023, the recorded rate across…
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Nostalgic meals
Here I am talking about food again. No cold peas this time, I promise 😂 What are some meals that hold strong memories for you? For me it's Cornish pasties. Even the smell of them takes me back to holidays at my Granny's house when I was little. The other day I bought some potato smiley faces and that felt really nostalgic…
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esa and carers
hi i get higher rate pip and esa , my daughter gets carers allowance for looking after me , if she claimed universal credit as well, would this stop my esa which entitles me to free prescriptions.
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Cup holder
Hello, my partner can only use one hand so she controls the chair with a joystick. The other side has the same fixing point under the arm but is not used, Are there cup holder available, large cup size that will utilize the fitting slot under the arm?
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Missed call today; first assessment tomorrow?
Hi folks, I'm in the process of going through my first claim. I'm due to be having a call from Ingeus tomorrow afternoon for the telephone health assessment. This was communicated with me a few weeks ago so I'm well aware. Strange thing is, this morning I got a call from an 0800 number that ends in 0700 and does seem to be…
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Med 3 Fit note not being accepted by the system
My surgeon gave me a hand written fit note - a valid Med 3 form The system refused the upload because it didn't have the printed qr code but that's because it was hand written. I then spent an hour on hold to speak to an agent, I explained the situation and she said she would send me a link so I could send it. Well Guess…
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ME / CFS Rollercoaster Symptoms
Hey Scopers! I have ME/CFS - diagnosed last November but have been told that I’ve probably had it for most of my adult life (M 50). It’s previously been misdiagnosed as depression - and whilst my mood has certainly often been low I never felt that this was the driver of my symptoms. Anyway! Back on track… my symptoms come…
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Do You Believe in Star Signs?♑️♌️
From daily horoscopes to birth charts, astrology is everywhere. Some of us may find that our star sign accurately describes our personality traits and energy levels, while others think it's all just random chance and coincidence. I am a Scorpio and while some traits I do identify with and see in myself, others not so much!…
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Finishing work
I've recently handed my notice into work and put a claim in for ESA. I am due a full pay check at the end of the month then I'll be unemployed. They are asking for my P45 as I don't claim SSP. Will they start ESA after that? This is a rapid reclaim and I already have a meeting scheduled with a work coach next week.
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minimum earnings and self employment and it's affect on my benefit
Hi, I've joined this community because I'm disabled and on Uc. I've searched for help and advice regarding minimum earnings and self employment and it's affect on my benefits. It's daunting and scary to make the leap when you rely on the support! I'm currently in touch with CAB and they are proving a little unhelpful. They…
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Only child feeling lost – dad had foot amputated, don't know where to start
Hi everyone, I'm an only child and feeling completely overwhelmed right now. My dad recently had to have his foot amputated due to diabetes complications. Neither he nor my mum can work, and there’s no other family around to help. I'm suddenly taking on everything myself with no money coming in, and I feel terrified. Could…
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Hi, my name is GP2026! Greenpower scooter unsafe
Has anyone else Had Accidents due to Green power mobility scooters Moving when getting on and off because the scooters moves when the Park Brake is fully on. I've had a few now my Scooters outside unused 4-6 months and I've had to buy a different one as its unsafe to use, I have Had an Interdependent report which Literally…
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The great ADHD Myth? - Channel 4 On Tuesday 18th August At 20:00
https://www.theguardian.com/society/2026/aug/18/great-adhd-myth-rising-diagnosis-without-treatment
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Parents may gift us a house – impact on Universal Credit and council housing?
Moving from a council house to a gift home(my parents pay for a house gift to us - we get a free mortgage) – but we need more information? Dear Sir or Madam, I am deaf and would be grateful if communication could be made here. I am seeking advice regarding a possible future housing situation. Nothing has been arranged or…
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Stress about getting a carer
I’m really stressed as I start uni in a few weeks (I’ll be commuting from home) and I have to get a carer to come into the university so I can use the toilet. But it’s so stressful as I have to find a carer that’s available at lunchtime and one who I feel comfortable around and I can’t really find one. It’s another thing…
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Hi, my name is Sarah
Hello, my name is Sarah, I am 42 years old and I was born with Scoliosis. I am new here.
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Sick note for 3 weeks, asked to complete WCA50 form
hi everyone i sent a sick note to uc today first time in years. It was for 3 weeks i expect to be off less than that as im awating some treatment. But then ill be back to work, but i was sent a message saying they were sending me a wca50 form to fill in, why would they do this im not plsnning on being off long term. I even…
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Parents and cares of children with cerebral palsy
Parents and carers of children with cerebral palsy-we want to hear from you. We'd love to hear your perspectives on: a time your child's behaviour was misunderstood. experiences of fatigue. talking to a child about cerebral palsy working with school what helped after diagnosis Your views can help Scope and the Cerebral…
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ADDING NEW DIAGNOSIS TO PIP
Hi I'm new here, so hoping for some sort of help if anyone as been through similar, I claim pip from 2019 at standard rate, always been 1 year review then a 2 I think it was then so on, not long ago I received the letter to say it was extended to 2031, but my circumstances changed a lot over the last 2 year's, I've lost my…
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Introduction
hello I am new to this. I just want to introduce myself, I have patient know best and the Scope comes up I had decided to join the community.
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Upcoming Events
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Scope and CP Sport Inclusive Sports Festival
Everyone should have the opportunity to enjoy sport. 🎾 Scope is partnering with Cerebral Palsy Sport to bring an Inclusive Sports Festival to Lee Valley Hockey and Tennis Centre on 27 October. It’s a chance for disabled people of all ages to try a range of sports, meet new people and enjoy being active in a friendly,…