Scope’s Online Community

Hi I have been on new style esa & in the non reviewed support group since 2020 with ME/CFS. During this time i have been in touch and I have done a bit of volunteering & have been learning therapeutic techniques to help me help my self heal. I’m now in a position to think about working again. I have been speaking to…

Hello I am a single parent and receiving carers allowance for my son, I am looking at going self employed to sell a couple of books I have written. Am I right in saying that the minimum income floor will not apply to me as I have caring duties? I will only be working a couple hours a week and the income will vary each…

Hello , I am new to this and recently been awarded pip I called and then have given me a date and set amount for my back payment. Has anyone had any issues with their back payment itself ? I am worried that even though they have confined a date and amount that I may not get it when they said . Has anyone had any issues…

Hello I have a 9 year old grandson he has autism I don't know how to help him he doesn't like leaving the flat all he wants to do is stay in his pjs on his phone I have tried to talk to him but he won't talk and tell us what's wrong is there any advice you can give me please my daughter is a single parent

I have a son called Finlay who is two and has global developmental delay. I am thinking that he may be autistic but we wouldn’t know until he’s older about that. He stims a lot, he cannot speak or walk yet but bum shuffles everywhere to get himself about. He’s very funny and babbles all the time, he says mama and dada and…

Good afternoon all, I am new here, I'm a single mum with my autistic son who is nearly 4 yrs old, he's become increasingly difficult outdoors, i tried to let him run off some steam at a local park, early in the morning so the park was fairly quiet, and my son would not leave, kicked and screamed and was hurting himself and…

Hi, I have been dealing with the horrific DWP since 2020. To be honest it's mainly UC (ugh) but having never ever had to deal with benefits until 2020 I sure have learned a lot. I also know how hard it is trying to deal with all this alone. Sorry if this isn't the right thing to say here but I am happy to try and get some…

I was registered with the NHS as a diabetic in the year 2013. The DWP added the disability on to the list of disabilities I have been told around the date of 2013. I was never written to by the DWP about my diabetes being added to the list of disabilities so never new I could claim the disabilities element on my legacy…

Hi ive just been awarded lcwra i heard from them 6 days after my asessment to say id got it my first sick note was in feb will i get back pay theyve not said anything

With my psychiatrist I've weaned from 800 mg Lithium carbonate in January to 0.75 ml priadel 520/5 in the last two months. 13 days ago I stopped. I was misdiagnosed bipolar, with support It was realised I have complex PTSD due to abuse. What should I expect over the coming weeks? I'd love to hear experiences

Hi everyone, I’m having an incredibly stressful time with the Motability Foundation regarding a grant, and I’m wondering if anyone else has been in a similar situation, being pushed toward a car that just isn’t suitable? I’m truly grateful to have been awarded a grant, but the foundation is insisting that certain vehicles…

What advice would you give to others? I find I'm good at giving advice but don't always listen to myself, anyone else? 😅 I found these answers interesting:

Warm greetings! I adore writing personal essays, and I also adore small creatures such as bugs (particularly acorn weevils) and fish also. It would be a pleasure to make your acquaintance. I am diagnosed with OCD, autism, and DID with psychotic like experienced. (What exactly is causing the psychosis is currently…

You can pick to trade places with one other person for 24 hours, would you do it and who would you trade with? Bonus points if you tell us what you'd do as the other person!

Imagine you're at a party, and there's a particularly lively guest who seems to masterfully avoid doing anything remotely helpful, like tidying up. They might distract you with a funny story, negotiate their way out of it by offering to get you a drink, or simply disappear at the first opportune moment. Well, in the world…

I am posting this on behalf of a Cerebral Palsy Network member World Cerebral Palsy Day is a powerful reminder of the strength, resilience, and brilliance within our community. Today, we stand together as one voice to celebrate every barrier broken, every triumph achieved, and every story shared. We are not defined by…

If anyone has made art regarding disability, I would feel honoured to see it :-) I have only made art regarding my DID, and am not sure if this is the right place to share it, but I would love to see other disabled artist's creations.

Personally…I'm a Tesco girl but I do really enjoy Sainsburys homeware and pyjama selection and Aldi's middle aisles😄 Which is your favourite? I wonder what the community majority will be..

Hi All, just hoping someone can answer a few questions I have I applied for pip on the 3rd of July (phone call) had text messages etc forms received, Capita are looking at your claim Went online to order my meds today from doctors and I can see in there that my medical records have been requested and were sent back to dwp…

Interesting read: https://www.theguardian.com/society/2026/oct/06/uk-domestic-abuse-survivors-ex-partners-behind-far-right-street-patrols (Trigger warning: Domestic abuse) "During their relationship, Lisa’s ex-partner was controlling. He kept her at home where he was emotionally and physically abusive towards her,…

The Equalities Act refers to "Reasonable Adjustments". I cannot find anything about how you deal with "Unreasonable Adjustments". so wonder legally how they fit in. I ask because my local authority has made a street no loading/unloading so effectively banning Blue Badge holders from parking outside the biggest medical…

hi all, I applied for carers element yesterday. I backdated it to the 5th of September as that’s when I started caring for said person. The reason why I did it so late was because I wasn’t actually aware that I could receive it! Will I be backdated for the pay I missed out on? Also, how long does carers element take to…

Hi ive just been looking into my brothers finances he lives in a residential home through 117 funding, I have on lots of occasions rang pip and asked why he can not claim they say its due to he funding, but 117 funding is half icb and half local authority, so dont understand why he's not getting it. It's been 9 years like…

This year, for World Cerebral Palsy Day, we are being asked to answer one question: THE CHANGE WE WANT TO SEE FOR CEREBRAL PALSY. We need a deeper, more compassionate understanding of the hidden realities of living with cerebral palsy. For many of us, cerebral palsy is only one part of the picture. Co-existing conditions…

looking into next year and I’m private renting there’s 2 aldultd on the lease me and my son I’m claiming my half plus I get help for my daughter next year she’s planning to go uni will I lose all the help I get for her She will be staying there but home weekends and as much as she can coz she’s never been away from home…

Im seeing a few posts on social media about missing payments. UC saying the money is paid but it's not reached the bank. Is this a problem at the moment

Hi All On the 16th September I was due to have my PIP assessment with Maximus after informing DWP about a change to my health. At the time I was due to have my assessment someone from Maximus phoned to say the health pro would call in 10-15 mins as they were reviewing my paperwork, health pro called 20 mins later to tell…

Hi all ive just moved to telford am in a wheelchair temporarily and i feel isolated as have to rely on my parents for transport i am 35 years old

I'm taking the DWP to tribunal over my LCW assessment. What is the history of the assessment, the descriptors and the scoring scheme for each descriptor? By this I mean, who wrote them, when and why? What input did the assessors eg Capita HAAS, have in these?

Hello everyone. I applied in March. I had my telephone assessment 4 weeks ago. I asked for my report and it came today. I got zero points from the nurse who took the assessment. I am autistic. I also have Marfans syndrome. I was diagnosed age 46 as autistic. The report states I mask incredibly well. This results in…