Scope’s Online Community
Discussion List
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New Here
Hello! I'm new on here and hoping to meet other people with similar experiences to me.
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Hi, my name is advocaterach! Disability Pride Wales event?
Hi there I'm a disability advocate and am part of Scope’s Storytelling Team and the MS Society's Disability Panel amongst other things.
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Hi, my name is chatterbox7!
That's because im stuck at home so don't get to see many people. Isolation is the worse. I have a partner, he is literally a silent partner & my daughter & granddaughter they make it worth getting up. Next worse being out on your mobility scooter & suddenly being invisable to all walking past ? What's that about. And the…
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Hi, my name is CharlieRay!
I am new here.
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Groundhog Day?
https://www.theguardian.com/commentisfree/picture/2026/jun/22/ben-jennings-10th-anniversary-brexit-cartoon
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Cerebral Palsy Scotland Community survey 2026
Got 10 minutes to help shape the future? We know completing surveys isn't at the top of your to-do list, but a few minutes of your time can make a real difference. Every response helps us understand what's working, what could be improved, and where we should focus our efforts next. The more people who take part, the…
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New style esa - will it end after 12 months?
Dear community, I have been awarded New Style ESA and placed in the Support Group. My letter says my award will end after 12 months. Is this an assessment/review period, or does my ESA actually stop after 12 months? I also receive LCWRA. Thanks
- University of Surrey CP Link research study
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Hi, my name is 2good2btru! I’m soo confused with all the lwca rules and would really like some ...
hi there. I’m soo confused with all the lwca rules and would really like some guidance on what to expect. I handed in my first 3mnth sick note on 30th of Jan 25. I got my letter for lwca on 25 Feb to b returned by 28 mar. I had my wca on 15 May and was told they would be advising DWP I’m unfit. When will my 3mnth wait…
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Thundergods
Well (pun intended), the Thundergods have delivered their message to the people on this histrionic day!
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How to stop overthinking
I am a overthinker person I spend a lot of time replaying conversations I know everyone overthinks sometimes, but lately it feels like it's becoming a habit and it's exhausting. I find it hard to relax because my mind is always analyzing something.
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Voluntary health call
Hi My hubby had a message on our UC claim ref a voluntary health call. I responded, no thank you and informed them he is in the LCWRA group. I also informed them that since Jan 26 till the 3rd June when I replied to the message that he had 251 seizures. He also has other health problems. Do I need to say anything else. Tyia
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notice of how,,,,,
aint it funny of how when somebody who thinks differently is mocked & has attempts of ridicule made on him…. interesting ….!
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is it possible to have a centrist party that focues on econamy
& its peoples wellbeing without being raving hard left/right. is it possible in the 21st century, I grew up with the ideology that we had choices, the left stood for certain polices, the right stood for certain policies, then we had a few centrists that leaned slightly left or right. I ask is it impossible now to have a…
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Hi, my name is martinezXgonzales! Found fit to work
Hello , please can I ask for views or some advice regarding myself. I'm a young adult , I have recently had a health assessment & I've been given a uc83 form as of yesterday. I am currently speaking to various people , while I wish to keep my own views personal, I've been encouraged to make an appeal regarding the decision…
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Pip for post lung cancer
Does anyone know of a group that could help steer me with starting a pip claim? I've been struggling for a few years and my wife wants me to do something another it. Kind Regards TonTony
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small lottery win
i have just won £1 on the lottery, need ideas on what to spend my winnings on😂
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A Warm Welcome To The Newest Members!🤩
A big hello to the newest members of the community! @rarj94 @beng @vlam33 @trudledoo @beverleyisaacs @BobbyBisto @Sarahjane78 @annajamila @mackajserarch @Nobendu18 @JudesC @Walton_123 @JediQueen @ajewole33 @Debava1 @teaspoon69 @rebeccastimson It is always lovely to have new members and I hope you enjoy your time on the…
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What TV Shows Are You Enjoying At The Moment?
I'm very late to the party with these two but I have been really enjoying This Country and Mandy recently😂 I had seen little clips of both shows before on social media but had not watched the full episodes properly until last week! Have you watched those shows? What are you watching at the moment?
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Is there any benefits I may be able to claim as I can't walk with out being in p
I have had an underactive thyroid for 22 years and doctors have never been able to stabilise it properly with medication. I suffered hair loss, and am in constant abdominal and back pain. I'm always tired and have gained a lot of weight. I have now been diagnosed with gallstones and find every day a struggle with the pain.…
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London dial a ride
Hello, can I call out to any other London Dial a Ride users who might want to discuss this service with me or any other users. I have no access to any private transport and cannot access public transport services near me. Unfortunately this service has become significantly less reliable for me as I’ve found recently that…
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Welcome To The Newest Members😄
A warm welcome to the newest members of our community😊 @Kully36 @V1ncentMaloneyBalone @Apricot41 @Suffy123 @DJBowery @delbwoy2003 @costallum @Rejjikay @silverhedgehog83 @Barton1963 @KatieT147 @MichaelHynes @Blueberry @strugglingfruit @AnnieBunnie @redbank @alanvic @Rainbow50 @Elisha @lisacdavies @AngieB123 @Agniesia9…
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Hi, my name is Julia247! How to overcome barriers with other parents?
Hi, I’m a Grandma, looking for ways to support my family with a child with AuDHD in mainstream. In addition to supporting their child, they face lack of understanding from other parents. Has anyone successfully overcome these barriers and educated the school community? The teachers are excellent, it is the wider, negative…
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UC - Made a mistake declaring bank balance. Will they realise?
will UC realise that I made a mistake declareing bank balance and there system will know . I’m on pip and lwrca . I don’t work . I’m a bit over 6000 . I don’t think pip counts income
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Do You Know A Good Word?
I came across a new word today "misosaskopeslexis" according to Louis de Bernieres definition it means a hatred of pointless words. Do you know a good word? Edited "misosaskopeslexis" is a word made up by Louis de Bernieres. Just to clarify.
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Social housing application support
Hello all, I am wanting to apply for social housing, but I need advice on completing an application so that I am given a band 1 or 2 banding. I have ASD, BPD, anxiety and depression. I believe that living on my own now would help immensely with those conditions, by making me more responsible in looking after myself and…
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pip tribunal CAB can no longer represent my son - do I give up?
Hi, my son (20)has a left sided hemiplegia since birth. he has his struggles like most people but he has a positive outlook on life . He has Pip currently daily living enhance rate and mobility standard rate . He used to have enhanced mobility but that has been taken away .I have been helping him to get back the enhanced…
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Student with cerebral palsy 'can achieve anything
Source from BBC News John Ayres A student with cerebral palsy who was told she would never walk or talk is about to graduate in criminology and has recently completed a half marathon. Issy Hart, 22, from Chipping Norton in Oxfordshire is studying at the University of Plymouth and recently completed the city's half…
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Hi, my name is Moduncdu! Botox experiences for CP?
Hi I am in my sixties with Cerebral Palsy(diplegia). Has anyone had experience of BOTOX injections ?If you have did you have any passive muscle stretching to help muscles to lengthen ? I look foreard to hearing from you🙂
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No PIP text despite sending my forms back. Is this normal?
Hi all, I sent my PIP review form back on Monday 15th June yet I’ve yet to receive a “we have your form” text. Is this normal? I’m a little worried it hasn’t arrived and my deadline was the 20th. I knew I should have sent it first class signed for. However I was low on funds and couldn’t afford it.
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Upcoming Events
- Nourishing families with cerebral palsy
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Northern Hybrid Cerebral Palsy Meetup
A meetup for adults with cerebral palsy who live in Northern England. Hybrid meetup for adults with cerebral palsy in Leeds. Join in person or online. Teams joining link sent after booking. This is a relaxed, friendly meetup for adults with cerebral palsy living in or around Leeds. This is a collaborative event with…