Scope’s Online Community
Discussion List
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Hi, my name is Sueh63!
Hello, We are a mixed age couple and in receipt of a joint claim for UC Hubbie has LWRCA and I receive carers allowance and the carers element in UC he also receives PIP, he is due to receive his State Pension in Sept. I am aware his State Pension will be deducted £ for £ but I have read elsewhere that the LWRCA will…
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Was on Carers allowance and universal credit
Until yesterday I was caring for my mother and receiving both carers allowance and Universal credit. She suddenly passed away. I'm also on PIP. After informing the dwp they want to have an appointment later this month, regarding work. I'm 65 in August and physically unable to work, due to tremor in my hands, epilepsy and…
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Dystonia
is there anyone else here who has cerebral palsy and suffers with dystonia I’ve been having bad flare ups where I’m locked in for days recently and it’s painful how do you deal with it?
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Hi, my name is Kevin1708!
Any advice on Transitional Protection - Council Tax JSA to UC … I had 100% reduction now only 75% 😥 Thanks in advance.
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Unusual pets 🐝🐘🐊🐧
If all the animals in your house (think pictures, prints, soft toys, game pieces, decorations, etc.) came to life, what unusual pets would you now have? I heard this question on the radio and found I have far more animal-themed things than I realised. There are probably more, but I would have: Penguins from my Christmas…
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upgrading the GreenPower JH500 mobility scooter
I am currently looking for anyone who has done upgrades with 3rd party motors and control like the ZHOZHUT 350W-1800W Electric Tricycle Motor sold on amazon. however i dont know if the mount points will line up with the differential or if the spline count is the same
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Hi, my name is Bill54! Bolts for Monarch Smarti scooter
Hello all I have scoured the internet for the bolts that hold the seatback to the seat and allow it to fold on a Monarch Smarti scooter. If anyone knows where I can buy them or what size thet are {not M8} I will be eternally grateful
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"I didn't even have a drink or a urine bottle." Nina's Law
"I didn't even have a drink or a urine bottle." In this powerful episode, Richard Luke, Cerebral Palsy and Membership Programme Lead at Scope, shares his experience of living with quadriplegic cerebral palsy after being diagnosed at the age of 3 following a negligent birth. It was the shocking reality of a hospital stay in…
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Cerebral Palsy Teens: Sheffield Summer Social
Our next in-person social is the Summer Social in Sheffield on Saturday 4th July. Bowling followed by food. 3:30 pm start. Changing Places facility available. Contribution towards travel costs for anyone outside a 25-mile radius. Last chance to register! Full info/sign up:
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Breaking the sex taboo: Andrew Gurza
As it is Pride Month, I wanted to highlight a trailblazer in the cerebral palsy community. I have known about Andrew Gurza since my second year of university. I was writing an essay about sexuality and disability. That is when I found #DisabledPeopleAreHot. Gurza created it. I have been a fan ever since. I have mentioned…
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Online, in-person or one-to-one?
We're looking to understand the challenges people face when dealing with HMRC or tax related issue and what sort of support would be beneficial. Have you experienced any difficulties dealing with tax or benefits issues? This can include: National Insurance contributions Child Benefit PAYE and Self Assessment Compliance…
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Warm welcome to our new members 🌞
Big hello to: @Scuba228, @cutebunny, @rubyrose36a, @ab1988, @antd55, @Denekan, @Edergton_9, @Lorraine_W, @kirstyltitshall, @tracy225, @Stinkyswife, @Danlauama, @Charlotteclements96, @tomhudson2, @jujuju, and @Southern! Lovely to have you join us on the community, I hope it's a friendly and welcoming place for you all ☺️…
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What was your favourite children's show?
I admit it, I still watch children's programmes. I can kind of get away with it as I have a toddler, but even before she was born I was partial to a cartoon or two. One of my favourite modern cartoons is Kiff. It's on Disney and has amazing song parodies in each episode. I was thinking about how different children's shows…
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Please could someone advise me
Hi, me and my partner have a joint claim on universal credit, he gets LCWRA and gets the payment for it, I am also on LCWRA but I dont get the payment for it I know its only 1 person to get the payment per claim. I am on enhanced pip for mobility and care so both components. My partner get enhanced daily living. My son is…
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🌈 Pride Month - June 2026 🌈
Pride Month is celebrated annually in June marking the anniversary of the Stonewall riots. You can learn more about Stonewall riots on this post from last year’s pride month: 🌈 The History of Pride: The story of Stonewall Inn 1969 🌈 Pride is a celebration of unity! Of love and friendship, acceptance and equality. It’s an…
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Ads encouraging people back to work when I log into UC.
Hi, last week is the first time I'd seen this. I due to go to a face to face financial review. Is this something which is likely to come up during the review? I wonder also if there will be greater focus on getting people who are classed as low capacity for work back into work. Thanks.
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ADP decision time?
Hi all anyone have timeline for ADP decision when targeted evidence has been provided. It’s been 10 weeks
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What's the one thing that genuinely makes a bad day better for you?
Not looking for big answers here. Just curious what actually works when the day's gone sideways. For me it's putting something familiar on in the background. A show I've already seen, so I don't have to follow it. Just noise that feels safe. Sounds odd but it genuinely helps.\ What's yours? Could be anything - a drink, a…
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Pip, universal credit
I keep hearing so much about reform and now labour going for people on disability benefits or universal credit , elections never used to bother me but now I’m panicking when someone mentions a new leader or or general election , how likely is it that my pip or UC will be effected ,lowered or even scrapped
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Anyone else find small everyday wins keep you going?
Had a proper good morning today. Made a full cup of tea, it didn't go cold, and I actually sat down to drink it. Sounds tiny, I know. But on some days that genuinely feels like a victory. Curious if others have little things like that moments that sound unremarkable from the outside but feel like a big deal when you're…
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Fun and Engaging Fine Motor Activities for Children with Cerebral Palsy
Fun and Engaging Fine Motor Activities for Children with Cerebral Palsy Generally, fine motor skills are more complex than gross motor skills and require more practice to learn. However, it can be difficult getting children with cerebral palsy to practice tasks over and over again without getting bored. These 20 activities…
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Just had a phonecall from the PIP decision maker…
Hi, I am posting this to ask when I will receive back pay, as I’ve just had a phonecall from a guy from PIP who said I have qualified for PIP. He also said there would be a lump sum sent out, but said I forgot to add my bank details on my form. He told me to ring the number he gave me and tell them my bank details so that…
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Lost and confused
Can't deal with electronic stuff. Need real help from humans.
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Universal Credit - Going abroad
I would like advice on UC and going abroad. My assessment period is 22nd to 21st of the month. If I go with my mum to see my brother in Australia when should o go and come back without losing
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Hi, my name is teaspoon69! How private pension affects LCWRA?
Hi there I'm thinking of taking my private pension early and need to know if it will affect my lcwra payment
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Hi, my name is Walton_123! PIP decision time
I started my pip application 12th march 2026 . Had my assesment 4 weeks ago. Called today and was told is now in someones work box. How long until a decision is made
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I'll never trust the police again
I honestly think I thought I must be the worst story out there, and when you find out your local police is the 2nd worst one in UK, well it makes sense and everything you've been through makes complete sense… And how they let down victims etc
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Universal Credit Act 2025 - Latest Updates (05.03.26)
The Universal Credit Act 2025 aims to rebalance Universal Credit by encouraging employment for those who can work and targeting support for those with severe health conditions. It takes effect from 6 April 2026. The Act ensures that the four rates of the Universal Credit standard allowance will rise above inflation from…
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El nino - give me my heritage back - PLEASE....
I hate the way its been hijacked…. by MSM, etc its a millennia old weather pattern, its a vortex of hot air that circulates around the south & mid Americas since year dot, it brings hot/wet/tropical conditions … notice of how it was termed "jet stream" for years, the reason wasn't science - it was an anti Hispanic vibe…
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Ryanair Extra Mobility scooter battery
I am travelling from the UK to continental Europe on a Ryanair flight. I travel with my mobility scooter abroad and the norm is for the airline to take the lithium battery with me on the flight and place it in the cabin. I have been able to get my hand on another battery to act as extra. My question is whether Ryanair…
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Upcoming Events
- Nourishing families with cerebral palsy
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Northern Hybrid Cerebral Palsy Meetup
A meetup for adults with cerebral palsy who live in Northern England. Hybrid meetup for adults with cerebral palsy in Leeds. Join in person or online. Teams joining link sent after booking. This is a relaxed, friendly meetup for adults with cerebral palsy living in or around Leeds. This is a collaborative event with…