Scope’s Online Community
Discussion List
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Pip question
hi everyone I did a video assessment on the 9th March 2026 on the 13th March DWP said a decision was made and a letter was sent out . It’s the 20th of March I still have not received any letter or any text msg . Someone said check on the gov proof of benefits but there was nothing there and it said we don’t support pip yet…
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Is it ok for a guy to want to hook up with a girl that is mentally a teenager?
Or is it frowned upon? Because of a cognitive impairment of borderline intellectual functioning and autism if she is really 30 but is mentally a teenager why would some guys be hesitant to hook up with a girl like that even if she can consent to sex? The disability is borderline intellectual functioning and autism. What…
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Cerebral Palsy and Incontinence: What’s the Link?
Incontinence (difficulties controlling bowel and bladder movements) in children and with cerebral palsy is very common. Most individuals with cerebral palsy eventually learn to avoid bowel and bladder-related accidents, but at a slower rate than the general population. This article will explain why people with cerebral…
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Recent conduct on the online community
We need to address something clearly: Over the past few weeks, interactions across parts of the community have become increasingly negative. Ongoing sniping, passive-aggressive comments, revisiting past conflicts, and assuming bad intent are creating an environment that is not sustainable. This community exists to offer…
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Waiting for tribunal - does renewal in January 2027 impact this?
Hello, just looking for some advice. My PIP appeal was received by the courts Nov 2024 and I was told to wait for a date. I still haven’t had anything. I did call the court system to make sure I was on the list and they did confirm that. If anyone in West Sussex has had a hearing and has any idea of time frames I would…
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how we hear thoughts
If we had our eyes on our arms instead of our face would we still instinctively feel that our thoughts are behind our skull. Or what if we had an eye on our arm and face would it feel part of our head and our thoughts are processed behind it?
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Local Meets / Group - West Midlands - Suggestions / Recommendations
Hi all! Does anyone know of any meetup websites or groups that I could join, please? I'm 27, based in Shropshire, and I have mental health and physical health issues. There are a couple of groups near me, but I think this is more for much older folk, which is fine, but I'd like to talk to more younger, like-minded people.…
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What does it mean when my boyfriend jokes about me cheating?
I cheated on him so many times he got mad and now months later he jokes about me cheating on him and when I’m with him he says cheater! Lol and smiles and laughs and says cheating girlfriend!! He says this quite a lot and and also said yesterday I had a girl over and joked around with me saying I had another girl over last…
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DIEP flap breast reconstruction surgery | Txdiepflap
Hello everyone, I’ve been going through a really challenging time and thought of sharing here to connect with others who might understand. A few months ago, I started noticing changes in my body like stiffness, slower movements, and occasional tremors. During my diagnosis process, the possibility of Parkinson’s disease…
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Manual door opening conundrum
Hi everyone Not sure if this is a good place to post this, but thought I'd give it a try. So I have a very complex problem I'm looking to solve and any ideas would be helpful. I am a wheelchair user and the door to my flat has a very heavy closer on it. I already have an automated door opening system but it breaks down…
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Feedback on accessible housing if you are homeless
Have you stayed in emergency or temporary accommodation that was not accessible for you? Are you likely to need emergency or temporary accommodation in the next couple of months and are worried it may not be accessible for you? We're creating a new webpage for the Scope website about accessible housing if you are homeless…
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friendship
Hi, I’m 20 years old and struggling to make friends. I used to socialize with people at work, but I had to stop working due to HEDS, which has caused severe mobility issues. I really want to make friends who understand what it’s like to live with a disability. I’ve been trying to find support groups or similar communities,…
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DRIVING AIDS
Hi Folks I'm in the process of buying a used car (Fiord Focus). Are there any driving aids on the market which could help me to: 1. Get a clearer view of the rear. 2. Help me park in tight spots (e.g. car assist) 3. Help in assisting the width of the car Thanks in advance.
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Access to work
I have a PIP car but I can't drive it due to my mobility and panick attacks. Will I get support from access to work eg support worker who can drive my car or taxi? If I get taxi, will I lose my car?
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Hi, my name is kassy65!
Hello my name is Karen from winch wen in swansea.
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Pathways to work
Hi everyone, apologies for not being here for ages, and a brief fly-by now as I'm down with a bug. But came across a new document published by the gov this morning and thought you'd all want to know. It's about their Pathways to Work program. From what I understand everyone on LCW and LCWRA will be contacted next week…
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NHS provided Wheelchairs
Anyone considering purchasing their own electric wheelchair - should read this https://www.wheelchair-alliance.co.uk/wheelchair-alliance-wheelchair-users But note - nowhere can I find out a maximum amount that NHS will pay for a personal wheelchair budget !
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Hi, my name is scare6089! Would I have to pay bedroom tax if my daughter moves?
Hi First time here I’m looking for advice please 🙏🏻 My daughter is due to turn 18 and leave full time education next month she will be going into full time work instead, I work 16 hours and also have a son he’s 9 years old (I get a disability element for him) my daughter is talking about moving to her bf’s soon,, where…
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UC Wrong for may
Sending my uc statement, for overanxious , or kimi. I am worried
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Inheritance, UC, PIP and bank account
Hi all! I’m going to be inheriting around £40k soon. I claim UC jointly with my husband. He also works self employed but I am LCWRA. I also claim PIP. I believe I will continue to receive PIP because it’s not means tested BUT does it get included in the amount of money in my bank account (which should not exceed £16k when…
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Virtual Bingo at 2pm today - get your virtual dobbers ready!
Links to your cards ahead of our game later are below. I'll add a comment at 1.55pm to remind everyone to be ready. https://mfbc.us/m/ywz6uy/1 @Amberpearl https://mfbc.us/m/ywz6uy/2 @WhatThe https://mfbc.us/m/ywz6uy/3 @Emilee https://mfbc.us/m/ywz6uy/4 @PracticeWotUPreach https://mfbc.us/m/ywz6uy/5 @westpest…
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Assistive product for individuals with a loss of fine motor function
Hi there, I am 2nd Year Industrial Design Student looking into the specific pain points and problems faced by individuals with limited/lower fine motor skills and their relationship with existing environments and aid/mobility products. Any responses from this demographic are greatly appreciated and they will be used…
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Hello
Hi Everyone I am New here
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Hi, my name is jugsy!
I have lumber Stenosis and it is gradually getting worse. I haven't tried the epidural yet and came off patches because of the constipation. Are the injections worth a try while I wait for my neurosurgery appointment 🤔?
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RADIO 6 - Stuart Maconie's Freak Zone
For Soapy especially - you can still hear Stuart Maconie on Radio 6 on a Sunday evening 8pm to 10pm. You're welcome 😉
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Ehlers-Danlos Syndrome (EDS) & Hypermobility Spectrum Disorders (HSD) Awareness Month
May is EDS & HSD awareness month. What does it mean to me? I had had problems since being a teenager (tho my Mum later told me she'd taken me to our GP when I was about 9; his diagnosis 'growing pains'). I don't think I thought much about the problems I had as they were just a part of me tho my Mum said don't mention these…
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Decision on PIP review
Had a text message yesterday to say that my PIP review decision had been made and to wait 2 weeks for my letter to come through. It doesn’t mention needing any further information or attending for an assessment - does this mean it’s all straightforward and my award has been made without the need for an assessment? Is there…
- Hi, my name is kaltunosman!
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Not sure about UC standard increase and transitional protection
I am on LCWRA, migrated from ESA support group. Since the April rates have gone up - my rent increased and my transitional protection decreased by the same amount. I understand that this is right. That's a separate thing to this post. But what I'm confused about is the standard UC rates. I thought my standard rate would go…
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Getting a job with autism
Dear scope community, I need some advice and guidance please. High functioning adult female with autism here. How do I get a job with no qualifications, no degree and no work experience? I left school with failed gcse’s, I suck at math I think I might actually have dyscalculia If I was at least good at something I could go…
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Upcoming Events
- Nourishing families with cerebral palsy
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Northern Hybrid Cerebral Palsy Meetup
A meetup for adults with cerebral palsy who live in Northern England. Hybrid meetup for adults with cerebral palsy in Leeds. Join in person or online. Teams joining link sent after booking. This is a relaxed, friendly meetup for adults with cerebral palsy living in or around Leeds. This is a collaborative event with…