Scope’s Online Community
Discussion List
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Excessive Sweating
My son, who is 27, has always had trouble maintaining body temperature, but now he is sweating so much that his clothes are getting drenched. Is this common in cerebral palsy? It generally happens when he is excited/nervous/or just using a lot of energy. Is there anything I can give him to help the situation. I am changing…
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Pip assessment (phone)
so I have managed to get a phone appointment for my first review assesment instead of going face to face. Now I am scared. Since yesterday I have developed this severe flare up because of stress I guess. My pip claim was for my psoriatic arthritis and fibrimyalgia got diagnosed after being awarded. I am struggling more…
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NEW Style ESA
Last July(2025) after years of seamless payments, DWP transferred my son to so-called NEW STYLE ESA and UC. Since January, on alternate months, DWP have omitted to pay any ESA. Each time I’ve phoned up (waiting HOURS on hold, while they knew I’m waiting) they apologised and reimbursed the missing amounts, and said it had…
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PIP update!!
Just saw a post today on FB (fightback) which said a lot of people have received letters recently re extending their PIP award. You can check online if you create a gov.uk one log-in. I did this, it was quite easy although from some comments others didn't find it so (I think opt for the app is the takeaway). Anyways,…
- Hi, my name is SAMA68_!
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Hi, my name is A_G_blue! Found fit to work by UC
New to all this - very active person until last November. On PIP - standard both - Blue badge and ESA and UC. As my work decided to get rid of me as my attendance was low (well yes i was on FIT notes). Now DWP UC have deemed me FIT to work despite gp signing off since November. So joys the ESA have stopped payments…just…
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Chocolate discussion
I need to find a new source of Chocolate - not Cadburys - that's not the same as it used to be and recent price hikes have really put me off the brand. Has anyone got any alternatives that still use the same ingredients (milk and cocoa solids) ?
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Free Swimming Session in Lincolnshire
Our inclusive swim session is open to all disabled people. It provides exclusive use of the main pool, small pool, magana carta splash area and slide. Event Details: Date: Friday 28 August 2026 Swim: 11:00am until 12:00pm Light snacks & social: 12:00pm until 2:00pm Venue: One NK Leisure Centre, Moor Lane, North Hykeham,…
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Hi, my name is steve1961! Neurodivergent community blog
I'm 65 years of age and in the past couple of months I've been diagnosed with both autism andd ADHD. It was such a shock as my being autistic had ever been mentioned before. I've met others in a similar situation and have decided to use my writing skills to help others in the neurodivergent community, especially in…
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On PIP and looking to get a loan
Hi I'm on pip and not 2 well.. and with everything going up I need 2 get loan.. me and my partner finished and now I'm doing it on my own so I'm struggling Elizabeth but in two months my daughter's back in the country she'll be helping me with build but until then I am not into place mentally this training me so if I could…
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Financial advice.
I am looking to leave a long term relationship but financially quite stuck. I have a few health conditions one of which is endometriosis which makes working incredibly difficult, I also care for my autistic daughter who currently cannot be left alone,she also will not stay with anyone else. What am I suppose to do?
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Daniel K Inoyue Solar Telescope - Incredible Images
https://www.theguardian.com/science/2026/aug/05/unprecedented-images-may-explain-one-of-greatest-mysteries-of-the-sun
- Here's a Puzzler for you.
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Hi, my name is cynithias!
Well I ‘ll tell you a bit of my background. Am Cynthia [Removed by moderator - Personal information] 43years single mother I have a daughter Lisa I was born Venezuela and raised in Venezuela It was much different when I was growing up, a beautifulin Venezuela ,and not many hurricanes approached our shores It was wonderful…
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One of your senses is now ten times more effective...
which would have the worst effect and which would be quite useful? My sense of smell is usually non-existent so having an enhanced sense of smell would be too overwhelming! Better eyesight would be great for me as I'm blind as a bat 😂
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Would You Like To Be A Cerebral Palsy Sport Young Ambassador?
We’re looking for Young Ambassadors aged 10 to 20 years old across the UK! Are you a young person with cerebral palsy who wants to build confidence, learn new skills and make a real difference? Join our “Together We Can” Young Ambassador Programme with Cerebral Palsy Sport. What’s it all about? This exciting programme…
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Council tax - PIP counted as earnings
Hi just join so not sure how it works,but just what to let you know that leicester city council have found away to take some of your pip award off you by counting it as earnings cheers andy burnham
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Hi, my name is Tezer1!
Hello everybody, nice to join the community!
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Hello to all our new members!
@johnnylara @lucasfischer853 @kevcity @barmy @Alistran84 @ishaverma @avathompson @maki909 @Jane16 @sameenahali @jeffonz @TrishaH @Lola2 @Robsign @fantasticman @myshelf75 @genevieve_OTstudent
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Bank statements DWP
I have been asked to upload my bank statements but I just a bit worried has I sell my old stuff on eBay and Vinted. It stuff I brought years ago for myself or stuff my friends and family have given me but nearly all of it was brought or given before I was on universal credit but I selling now because I do not want it and…
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Advice
Hi I am a carer and uc sent my daughter one I care for in her journal a message relating to help or surport relating training or getting back to work. Due tobit being voluntary, chose ignore message , they never mention they would ring her... Today dwp rang her phone she gave to Me and the dwp person said she was ringing…
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Pip claim
Hi I have suffered from rheumatoid arthritis since 1995 I was 22 years old now 53. I am shortly due to have a shoulder operation & the recovery time is upto 12 months to get back to full health I am left handed & the operation is on my left shoulder I was thinking of applying for pip but not sure if I qualify for it. I…
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British Plastic Waste Abandoned In Turkey.
https://www.theguardian.com/environment/2026/aug/04/plastic-waste-microplastics-exports-recycling-turkey-farmers-pollution-environment-recycling We 'recycle' in good faith. I would maybe have been better throwing it in general waste, at least with my council, it then gets incinerated and turned into electricity.
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Help about free NHS perceptions
hi all I was just enquiring I received letter from business services authority and they are claiming that between the 10th April to the 5th may 2026 that they wasnt able to confirm if I was entitled to free nhs prescriptions I’m very confused as Ive always been entitled and nothing has changed in my circumstances Any help…
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DWP ESTATES RECOVERY(Scotland)
My brother died in 2024. There was no will. Confirmation/Probate was obtained. My 84 year old father was next of kin and the Estate Representative. The estate was distributed in 2024. DWP come along a year and a half later (Sept 25) to say they want to check if benefit overpayments occurred as the capital amount on the…
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Access to work
So i got an email exactly one month before my access to work was to expire. I reapplied twice now and heard nothing back yet and now its due to in end in a few days and they're impossible to get hold of most of the time - Anyone else had similar experiences. I just realised you can reapply 12 weeks before but wasnt aware…
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Looking for wheelchair accessories
I have become a wheelchair user looking for accessories that work for me
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Baclofen for foot spasms, any natural alternatives?
my adult daughter has recently developed spasms in her right foot which causes her a lot of pain these can last from a few hours to over 48 hours we have been advised to start her on baclofen 3 times daily I am very concerned about the side affects of this medication and would like to try a more natural alternative? Any…
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Care Act deafblind assessment
Can I ask how long should it take once a drafblind assessment report has been done and sent to the la should it take to contact me about a care plan I'm currently waiting for support it took since November do the assessment
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Hi, my name is Dennis1a! Experiences with trust executors
My son and I are discussing setting up a disabled persons trust for him. We know that many disabled people who have DPTs find that executors can be paternalistic and behave as gatekeepers of the fund rather than enablers. We also understand that the executors can be slow in implementing spending requests in a way that…
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Upcoming Events
- Nourishing families with cerebral palsy
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Northern Hybrid Cerebral Palsy Meetup
A meetup for adults with cerebral palsy who live in Northern England. Hybrid meetup for adults with cerebral palsy in Leeds. Join in person or online. Teams joining link sent after booking. This is a relaxed, friendly meetup for adults with cerebral palsy living in or around Leeds. This is a collaborative event with…