Scope’s Online Community
Discussion List
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Anyone else?
Does any one else have anxiety about what others think of you as a parent because of your child’s behaviour related to their special needs?
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Need some advice
Hi everyone, me and my partner has a non verbal autistic son who is 7. He's getting a handful for mum as I'm at work. We not sure if we both care for our child or just swop roles, she work and I stay at home. He's all dad ATM and kicks off when I go work or go anywhere without him. We do have a PA but it's only 4 hours a…
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Sleeping on the street with cancer...
Hi, I have been living in Lambeth for 6 years, my health and life have been in ruins, I dreamed of returning to work, I met a fantastic woman with whom I know I could start my life again, even if I died in the meantime. A few weeks ago the doctors announced that they had found signs of cancer in me, in 3 places in my body,…
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PIP Activity 9 Communicating face to face and Activity 1 mobilty
Can anyone simplify this for me Andrew Department for Work and Pensions guidance in PIP Assessment Guide (“a person should only be considered able to follow an unfamiliar journey if they would be capable of using public transport”) - whether claimant who cannot access public transport owing to physical problems can qualify…
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Motability changes
We live rurally , have to travel to the next county for hospital appointments. There's no public transport. Really Concerned how we'll manage with milage being reduced to 10,000/year. If we want to do anything we have to drive.
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Universal credit review
HelloHello, We have been asked to provide bank statements for a review this was on the 25th feb. They asked for 4 months and I have went on to my app and downloaded the last 4 months that were available. Obviously they only cover part of February as Februarys hasnt been created yet. Is this corrected or do I have to do it…
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Depression due to unemployment
Hi I am struggling with my mental health and feeling really useless and worthless My depression comes from stresses of daily life living with autism, loneliness and I think mostly because I am not in employment or doing much productive with myself. I’ve never held down a job before so I guess I could say I’ve only had some…
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Mobility Giant Buy Back
I called Mobility Giant last week, and we agreed on a price for my now unused boot scooter. Today at 07:45, a van collected the scooter, and I was told to call their office in Sevenoaks after 09:00, in order to receive my money. Yes, selling privately would secure higher sale price, but i wanted to let you know that such a…
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Joint funded care, council asking for £1000
Hello all, My son age 55 is in an aquired brain injury rehabilitation unit has been since 23 December 2025 . He receives middle rate care and higher rate mobility .He also receives ESA now UC He now has to pay £159 to the home and £30 for himself . He has lost both care and mobility due to being in hospital and i repaid…
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Soumitra - How do I cope with social isolation or loneliness?
Hi everyone, My name is Soumitra [Removed by moderator - personal information], an Oxford-based entrepreneur & photographer. I’m looking for ways to improve my workplace skills and boost my confidence at work. I’d love to hear from others who have experience in this area. Do you have any strategies, tips, or resources that…
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ESA payment is late
I'm waiting to see if I've been moved to the support group for ESA. I've had the telephone Assesment band all documents Dwp have revived. My usual sea payment is now 2 days late . Any ideas I can't call as I'm not in the Uk at the moment
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PIP Appeals
How long is the duration for PIP Appeals to the FTT. I applied for PIP daily living on 17/07/2024 and my application was refused on 05/11/2024. I then apply for MR through Citizen Advice Lambeth and Merton and it was refused on 05/12/2026. Centre made appeal for me to the FTT on 17/10/2025 and in October 2025, the DWP rang…
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Help needed on adaptations and statutory overcrowding
Hi, need some advice, Im disabled with two teenagers daughter 16 and son 13, we live in a one-bedroom basement flat, ive needed adaptations since 2015 unfortunately due to being overcrowding ive not been able to get these adaptations ( walk in shower, toilet and kitchen) I have 8 steep stairs to street level, ive been…
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Hi, my name is BabooshkaBoys123! UC official error
CCan Someone please help, I was migrated to UC from working tax credits in January 2025. Despite gaving pip and mobility award and blue badge dwp did not assess my health. They have admitted this is an official error. I had transitional protection and I have read somewhere that if they had assesed me correctly at the…
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Hi, my name is Coraltam1! Change carers to severe disability allowance?
I wanted to know , if I could change my carers allowance , to the sever allowance , as my person receiving carers allowance , cleans twice a week for me but rarely turns up , plus numerous people I know , claim for family members , bur don’t actually do anything , I would prefer to claim an allowance , I could pay fairly…
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UC and 6 month disregard after sale of inherited house
Hi I was told my CAB, Scope and UC themselves that I would qualify for the 6 month disregard of capital after the sale of my late mum’s house in which I lived. Sale completed a week ago. I reported the capital which is in a joint executors account held by me and my sister. Her house purchase completes tomorrow. Mine has…
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BUSINESS STARTUP GROUPS
Hi Folks Are you aware of any business start up groups and business mentors for disabled people? Thanks
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Advice on how to cope with FND when you are autistic and have mh issues too
Firstly I'd like to say I didn't read the 'Get Started ' page so didn't realise my first post would be in the say hello chat. I went more in depth on my story in there and I'll try not to repeat myself too much because I don't want to unintentionally spam this platform. So I was diagnosed with FND (well, I was diagnosed…
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As a society, are we getting more suspicious/ less tolerant of others
I've been thinking about this since the other day. In a queue, in a shop chatting away to a lil' kid and his mother says, " You've made a friend, he's usually shy " Innocently I replied " Kids like me and I like kids" I swear it was like being in a vacuum. Heads turning to look at me and the cashier saying, "Did that sound…
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New Style ESA and PILON
Hi there, I am currently receiving New Style ESA in the Support Group. I have recently been dismissed from my job due to capability of ill health and i am due to receive a Payment in Lieu of Notice (PILON) of 4 weeks and holiday pay. I would like to clarify whether receiving these payments will affect my ESA, and if so,…
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Closed universal credit claim. Can I appeal?
My universal credit claim was closed suddenly today and I need some advise. The reason was too much capital in a house I wasn’t occupying ( equity of 50 k ). I vacated the property after falling ill and staying with my elderly parents whilst recovering from major surgery. I have returned to the property after 6 months…
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Advice from the community
Hello Community I have never been diagnosed with cerebral palsy, but after putting all my health issues together, it seems to fit well into a non-severe category but still something which affected me profoundly. When I was six I had two operations for strabismus (lazy eye). About this time I developed a stutter. My…
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Hi, my name is trina65! How do you manage to pay bills?
Hi,how do you all mange to pay for energy and cancel tax bills Thanks for reading
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Hi, my name is barrygeater!
hi im after advice please.I have a mobility car which broke down approx14 th feb.I havd to wait to get it picked up as RAC could not fix it,and was advised it needed lifting equipment onto a carrier as its a steering issue,and an automatic plus everytrhing had shut down.The RAC mobility gave me 5 different times over 3…
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PIP awarded but MH ignored. Feeling conflicted about going for MR.
Hi. I was amazed to be awarded PIP - although I do believe I am eligible due to physical health issues. A smattering of 2's in Daily Living, no 4, got me low rate for 2 years, review due in 18 months. While I was pleased, having lived below the poverty line for the last few years, I was/am disappointed. I have depression…
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Hi, my name is goA2! Daughters with autism
Hello everyone, I’m a mum. I’d like to share with you my family life. My teenage daughter is autistic, she also struggles with her mental health. She spends most of her free time in her bedroom. She has no friends at the moment. She struggles in social situations. She says her autism is a parasite and she wishes she didn’t…
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Stenosis l4 l5 c5 c6
I have stenosis L4 L5 that makes walking difficult, since November I have pain radiating down my left arm, sometimes its like a lightening pain can last around 10 seconds, my shoulder is painful and neck is bad all the time, to the point I cant sleep on my left side, on my mri a year ago it said about a disc bulge in c5/6…
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Am I forced to resign?
This discussion was created from comments split from: Would you like to share your Online Community experience? .
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Hi, my name is tuzla44! HB suspended
hi my mum have medical issiue and my sister have cerebral palsy, i living with my wife,but my parents have medicial issiue thats why i started live with them 3 times a week, i reported to housing benefit they just told me that its fine,they didnt give me any documents for prove, and now my wife applied to housing benefit…
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Permitted work - PW8 form, will benefits stop?
a number of years ago I did permitted work for 6 months. That cane to a natural end after 6 months with a possibility of more permitted work if opportunity arose. At time I didn’t inform dwp that it ended because it appeared to be opened end and my fear of speaking to them. Dwp were aware of the permitted work so my…
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Upcoming Events
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Scope and CP Sport Inclusive Sports Festival
Everyone should have the opportunity to enjoy sport. 🎾 Scope is partnering with Cerebral Palsy Sport to bring an Inclusive Sports Festival to Lee Valley Hockey and Tennis Centre on 27 October. It’s a chance for disabled people of all ages to try a range of sports, meet new people and enjoy being active in a friendly,…