Scope’s Online Community
Discussion List
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Manual door opening conundrum
Hi everyone Not sure if this is a good place to post this, but thought I'd give it a try. So I have a very complex problem I'm looking to solve and any ideas would be helpful. I am a wheelchair user and the door to my flat has a very heavy closer on it. I already have an automated door opening system but it breaks down…
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Feedback on accessible housing if you are homeless
Have you stayed in emergency or temporary accommodation that was not accessible for you? Are you likely to need emergency or temporary accommodation in the next couple of months and are worried it may not be accessible for you? We're creating a new webpage for the Scope website about accessible housing if you are homeless…
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friendship
Hi, I’m 20 years old and struggling to make friends. I used to socialize with people at work, but I had to stop working due to HEDS, which has caused severe mobility issues. I really want to make friends who understand what it’s like to live with a disability. I’ve been trying to find support groups or similar communities,…
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DRIVING AIDS
Hi Folks I'm in the process of buying a used car (Fiord Focus). Are there any driving aids on the market which could help me to: 1. Get a clearer view of the rear. 2. Help me park in tight spots (e.g. car assist) 3. Help in assisting the width of the car Thanks in advance.
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Access to work
I have a PIP car but I can't drive it due to my mobility and panick attacks. Will I get support from access to work eg support worker who can drive my car or taxi? If I get taxi, will I lose my car?
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Hi, my name is kassy65!
Hello my name is Karen from winch wen in swansea.
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Pathways to work
Hi everyone, apologies for not being here for ages, and a brief fly-by now as I'm down with a bug. But came across a new document published by the gov this morning and thought you'd all want to know. It's about their Pathways to Work program. From what I understand everyone on LCW and LCWRA will be contacted next week…
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NHS provided Wheelchairs
Anyone considering purchasing their own electric wheelchair - should read this https://www.wheelchair-alliance.co.uk/wheelchair-alliance-wheelchair-users But note - nowhere can I find out a maximum amount that NHS will pay for a personal wheelchair budget !
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Hi, my name is scare6089! Would I have to pay bedroom tax if my daughter moves?
Hi First time here I’m looking for advice please 🙏🏻 My daughter is due to turn 18 and leave full time education next month she will be going into full time work instead, I work 16 hours and also have a son he’s 9 years old (I get a disability element for him) my daughter is talking about moving to her bf’s soon,, where…
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UC Wrong for may
Sending my uc statement, for overanxious , or kimi. I am worried
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Inheritance, UC, PIP and bank account
Hi all! I’m going to be inheriting around £40k soon. I claim UC jointly with my husband. He also works self employed but I am LCWRA. I also claim PIP. I believe I will continue to receive PIP because it’s not means tested BUT does it get included in the amount of money in my bank account (which should not exceed £16k when…
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Virtual Bingo at 2pm today - get your virtual dobbers ready!
Links to your cards ahead of our game later are below. I'll add a comment at 1.55pm to remind everyone to be ready. https://mfbc.us/m/ywz6uy/1 @Amberpearl https://mfbc.us/m/ywz6uy/2 @WhatThe https://mfbc.us/m/ywz6uy/3 @Emilee https://mfbc.us/m/ywz6uy/4 @PracticeWotUPreach https://mfbc.us/m/ywz6uy/5 @westpest…
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Assistive product for individuals with a loss of fine motor function
Hi there, I am 2nd Year Industrial Design Student looking into the specific pain points and problems faced by individuals with limited/lower fine motor skills and their relationship with existing environments and aid/mobility products. Any responses from this demographic are greatly appreciated and they will be used…
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Hello
Hi Everyone I am New here
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Hi, my name is jugsy!
I have lumber Stenosis and it is gradually getting worse. I haven't tried the epidural yet and came off patches because of the constipation. Are the injections worth a try while I wait for my neurosurgery appointment 🤔?
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RADIO 6 - Stuart Maconie's Freak Zone
For Soapy especially - you can still hear Stuart Maconie on Radio 6 on a Sunday evening 8pm to 10pm. You're welcome 😉
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Ehlers-Danlos Syndrome (EDS) & Hypermobility Spectrum Disorders (HSD) Awareness Month
May is EDS & HSD awareness month. What does it mean to me? I had had problems since being a teenager (tho my Mum later told me she'd taken me to our GP when I was about 9; his diagnosis 'growing pains'). I don't think I thought much about the problems I had as they were just a part of me tho my Mum said don't mention these…
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Decision on PIP review
Had a text message yesterday to say that my PIP review decision had been made and to wait 2 weeks for my letter to come through. It doesn’t mention needing any further information or attending for an assessment - does this mean it’s all straightforward and my award has been made without the need for an assessment? Is there…
- Hi, my name is kaltunosman!
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Not sure about UC standard increase and transitional protection
I am on LCWRA, migrated from ESA support group. Since the April rates have gone up - my rent increased and my transitional protection decreased by the same amount. I understand that this is right. That's a separate thing to this post. But what I'm confused about is the standard UC rates. I thought my standard rate would go…
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Getting a job with autism
Dear scope community, I need some advice and guidance please. High functioning adult female with autism here. How do I get a job with no qualifications, no degree and no work experience? I left school with failed gcse’s, I suck at math I think I might actually have dyscalculia If I was at least good at something I could go…
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My mentally ill neighbour threatened us with a weapon
Hi, I live in a housing association, for three years we have lived underneath a man with diagnosed schizophrenia. He has been hospitalized for this once before this incident. He is generally disruptive but we have tried very hard to be understanding, we supported him, mediated conflict he often got into and dropped off…
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Hi, my name is sallee!
Hi everyone just wanted to say hello I’ve just signed up I’m a newbie
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Is there another item i could link to the mobile that works better ?
Hello folks. Im here in search of info as to help with phone calls. I have severe hearing loss and recently suffered a stroke that has affected my balance and appears to have made my hearing or lack of it worse. My main problem is answering phone calls. I have tuned my hearing aids (NHS) into the phone but still struggle…
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Hi, my name is Sezthetall15!
Hi im new to this. Energy management? Travelling with sticks. Luggage. Help!
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An Emergency Handbrake for UK Welfare
From the Rightsnet site Tony Blair Institute calls for ‘non-work-limiting’ conditions to no longer lead to entitlement to benefits Further to calls last year for action to stop people with less severe mental health problems from accessing disability benefits - from, among others, the Shadow Work and Pensions Secretary,…
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POOR SAM
He is 14 months old now and three weeks ago I let him out in the garden. This afternoon he has limped in with his front paw swollen. I cannot work out if it is a sting or he has jumped and hurt it when he landed. Vet tomorrow at 9.00am He won't let me touch his paw or even look at it properly.
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Pip review
Hi My hubby got his award letter last week for a ongoing award. He was given enhanced on both living and mobility, on review it's stayed at the same award. Do we have to inform UC that he as been given a ongoing award because that already know he's on pip?
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Lost my PIP award/assessment letter, help please?
Hello, I have memory issues so please be patient. Many years ago(can’t remember the number but within ten) I got enhanced pip on both for a period of ten years, I’ve moved house last year and somehow the letter got lost. I had a paper based review of any change in circumstances during covid and my award continues but…
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Right to work scheme
Is dwp going to force me to go to work i dont quite understand what this scheme is about please hell if you can
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Upcoming Events
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Scope and CP Sport Inclusive Sports Festival
Everyone should have the opportunity to enjoy sport. 🎾 Scope is partnering with Cerebral Palsy Sport to bring an Inclusive Sports Festival to Lee Valley Hockey and Tennis Centre on 27 October. It’s a chance for disabled people of all ages to try a range of sports, meet new people and enjoy being active in a friendly,…