Scope’s Online Community
Discussion List
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VILE PIP review/assessment
Had the most awful review. Honestly feel absolutely terrible. the lady was so sharp, not mental health aware kept talking over everything wouldn't let any explanation happen Literally felt like she was there to tick a box and as soon as she had the answer she wanted to hear, she moved on. If 'no' was answered she would say…
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Hi, my name is sixtsense83!
So I rang pip today and they said that a decision has been made on the 15th April and they have sent me a letter. If I didn't receive the “you have been awarded “ text does that mean it's a no? First pip claim
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My son has panayiotopoulos syndrome and autism
Hi my son has panayiotopoulos syndrome and autism just looking for any advice or anyone whos child has this condition, as we're feeling quite isolated at the moment
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Scope Bingo and other games - How would you prefer to play?
Morning lovely community members ☺️ We've been having a think about new games we could introduce which might be fun for us all, and maybe looking at some more interactive games like Bingo, or a Quiz. We want to get your views and preferences on how we go about this. If it's something you'd be interested in, we'd love your…
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PIP Tribunal- Unexpected Phone Call
Hello all! I need to ask this as I’m really confused and I think my partner is tired of me asking him😂 I’ve appealed my PIP MR decision and heading to tribunal next. I’ve had so many wrong issues with my PIP claim and had to get my MP involved to help resolve it like missing the appeal deadline and refusing to take my…
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Help needed daughter turned 16 partial payment
Hello, we dont know all the Ins and outs of DLA my daughter only started receiving it late last year, we thought we received a back payment couple of weeks ago, but now believe it was a partial payment as she turned 16. We only received our pip claim letter 3 days ago. I can't specifically find the right answer online…
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Informing Job Centre of saving in future
After the dwp disregarded the pip backdate payment l, do i inform the dwp when by saving come to £16k, without the back payment or the total amount of saving if I reach there before the 52 weeks
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Cost of Courses when Studying as a disabled single parent - help?
As the title says, I'm a disabled single parent to a disabled child. They have DLA and an EHCP, so I'm technically not required to search for work myself at the moment, but I really want to use this time to retrain in a career that will allow me to work to my abilities, taking my disabilities into account. I get PIP now…
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Health assessment weeks ago - no update
Hi, I had my health assessment weeks ago and I've not had any update. I don't know if I'm in the support group or anything. My benefit has been reduced because I apparently owe money (fine) but how do I find out about the group situation? I'm not well enough to work but I was thinking of trying to do something maybe once…
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ESA/UC - would closing my UC claim affect my ESA?
I was migrated moved from mixed ESA to new style ESA and UC . I also recieve PIP . I have more then 6 thousand savings . Im finding the whole thing of updating every month changes up and down stressful as i dont do online banking and have to physically visit the bank to get statements . Also not good with numbers and need…
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Hello to our new members 👋
Big welcome to those who joined us yesterday: @haron, @treegreen, @chlolou01, @JessicaLilyBeech, @mdtturner, @BillyBoy58, @JRW89, @Lisa0011, @GreenGirl691, @EmmaKC, @robinhood, @stayingstrong, @LonelyGuy, @Jocandoall, and @manolita777! I hope some of you have had a chance to look around and maybe join in with some of the…
- Hi, my name is lily2865!
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Advocate
I am autistic. I'm looking for a advocate. I'm trying to move into supported living.
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Hi, my name is CDG1996! Am I entitled to PIP back pay after it was stopped?
hi my pip claim got stopped in November. I am entitled to it till August 2026. I sent my forms back in October and they’ve only just received them in march. Am I entitled to the last 5 months payment or not? As they won’t pay me out for the last 5 months. I put in a mandatory reconsideration in and someone’s been looking…
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Fed up
I'm done, I can't and don't want to live. My life is ****, I ask for help, made to go to someone else, and someone else and someone else. You kno I have to deal with flashbacks of every single encounter. I havent got the energy to exist. Do you want my dog? I thought I could do it but I can't. Wanted to die for last 22…
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Pension credit guarantee credit
Looking for advice please? Is there a limit to your savings if you are in receipt of pension credit guarantee credit that would affect your housing benefit entitlement? I have read that the usual £16000 limit does not apply if you are in receipt of the guarantee credit. I get this because I get daily living enhanced care…
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Hi, my name is denisegreen1live! Where can I get help with my MR?
Hi my name is Denise and I am 62 years old and need help and advice with my DWP Mandatory Reconsideration. I have put in all my evidence to support my claim but they are now saying I need to fill in a new questionnaire as I have put in a new sick note. My argument is that my previous sick note had not ran out when my…
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Emotionally Torn
I have a girlfriend who I will have been with for 5 years next week. She’s kind and caring and has a good heart. We moved out of her mum’s house and into our own house almost a year ago now and while she’s quiet I feel like she makes the decisions. She has been on two holidays while we’ve been here, she goes out for food…
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Carers Allowance - temp loss
Does my wife lose her carers allowance - if she is unable to care for me for 6 weeks due to undergoing an operation, in a weeks and half, to remove her womb due to cancer ? Bear in mind that she has cared for me for 22 years without a single days break and has been claiming CA for 14 of those years. She is planning on…
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UC why do they keep doing this
Ive been on UC for just over a year. Payments have been the same every month with we have 2 lots of carers allowance been deducted, only the last 2 months they've only deducted part of my husband's. I wrote on the journal and told them it was wrong . Had a letter saying would be deducted monthly to pay it back. This month…
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Hi, my name is haron! UC message inviting me for a chat about help
i have received a message in my journal from job centre Which says " would you like to have a chat about how can i help you? " it says the this chat is voluntary. i am in UC LCWRA , shall i ignore this message or shall i respond by saying "NO thank you" please share your advise thanks
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Suicide Prevention Letters (Reasons to Stay)
Hi. A family member just told me about this amazing international suicide prevention organisation called "Reasons to Stay" that is based on letter writing. You can read and/or write letters to encourage people to rethink committing suicide. What you read is picked at random, and what you write is sent at random. I've read…
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Why do my emotions feel so different from my parents?
Lately I’ve been struggling with my emotions, especially around my parents.I feel like my emotional reactions are much stronger and more unstable compared to theirs. I get anxious very easily, I get frustrated quickly, and sometimes I feel really alone even when I’m with them. It’s confusing because they seem calm or…
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Carers allowance
If my partner claims PIP and I get carers allowance for him, do they take the amount of carers allowance from my universal credit ?
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Therapy starts tomorrow - very anxious
Morning all, Tomorrow I start mentalisation based therapy (MBT). Its an hour a week 1-2-1 (the bit that starts tomorrow) and 1.5 hours online group sessions. I know the therapist even though he has never been mine before. I know I'm reasonably comfortable with him but its a different thing when it comes to being vulnerable…
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Leeds meet up feedback
Hi everyone We currently run an in‑person cerebral palsy group at the Leeds Hub on Mondays. We want as many of our community in and around Leeds to attend as possible. We would love to hear what you want and need from a cerebral palsy group. Please comment or message us to tell us: • What kind of support would you want…
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Supporting Docs - Nimbus/Blue Badge
Hey all, I’m looking for advice on obtaining supporting documentation for blue badge and Nimbus card applications. I have a hidden physical disability that’s also dynamic and varies significantly from day to day. I’ve applied for a blue badge and my council has requested further documentation. This documentation needs to…
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Allerton woman with cerebral palsy wants to break records
By Freya Thomson From Telegraph and Argus DIAGNOSED with cerebral palsy at just six months old, Bradford woman Alana Walker has not let her condition define who she is or what she can do. Now 33, Ms Walker, from Allerton is a competitive athlete and is "now looking to break multiple world records and gain a world title."…
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Coffee - What Type Is The Best?
Is it me or am I having a nightmare?! I am shocked to see how expensive coffee is today! To that end, I was just wondering how does everyone like their brown powder to be?
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Hi, my name is BillyBoy58! Will I be asked for a PIP review in November 2026?
I scored 4 points in one daily activity at my PIPS tribunal with a total of 11. Will I be asked for a review/renewal in November 2026
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Upcoming Events
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Scope and CP Sport Inclusive Sports Festival
Everyone should have the opportunity to enjoy sport. 🎾 Scope is partnering with Cerebral Palsy Sport to bring an Inclusive Sports Festival to Lee Valley Hockey and Tennis Centre on 27 October. It’s a chance for disabled people of all ages to try a range of sports, meet new people and enjoy being active in a friendly,…